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We have created this Guestbook to allow our website visitors to ask questions and express their opinions. These comments are a valuable source of information about platelet disorders. We may respond to some of the inquiries when it is appropriate, but we will not respond to most questions or comments. The Guestbook cannot be a source for medical advice; patients must get their medical advice from their doctor.




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Recent Entries

Post 1 - By: Cheryl turcotte - Post Date: 4/13/2014
Hi This is my third ttp episode I think I need as much information as I can get
Post 2 - By: Sewa Mobil Murah Di Bali - Post Date: 4/3/2014
I,ve had TTP about 6 times now an it,s very worrying.I,ve just been told my ADAMTS13 level as dropped to under 5% so i feel like my body is a ticking time bomb.
Post 3 - By: Eric - Post Date: 3/26/2014
I was diagnosed with Essential Thrombocythemia, my platelet count is too high. What is causing overproduction of platelets? Can this cured without the use of drugs which are too costly.
Post 4 - By: R. A. Kopko - Post Date: 5/21/2013
On April 26, 2013 I noticed a few small red dots on my skin and thought nothing of it. While working in the yard doing some moderate landscaping the next day, I tasted blood in my mouth and was spitting some out, I assumed I had bitten the inside of my cheek, and ignored the issue. Later in the afternoon I went in to shower because the family wanted to go out for dinner. While in the shower I noticed that those few red dots had exponential multiplied. I was now covered in them from my feet to my neck. When I got out of the shower I looked in my mouth and saw 6-10 round purple spots and when I looked under my tongue I saw that there were about half a dozen small red spots that were leaking blood. The only reason I looked was that I started tasting blood again in the shower. I did very little on Sunday and then called my Dr. on Monday morning. He is a professor at UTMC, and did not have office hours on the 29th due to work with residence. When he got the message I left he had his nurse call me and tell me to be there at 1:00 so he could see me. At this point he confirmed my self diagnosis of the spots being Patechia and purpura, yes I google well. He had his office lab draw blood for a CBC and sent me home. At 9:30pm he called me and said have someone drive you to the hospital, now. Someone will call you with your room number while you are on the way. At 2pm my count had been 4, they did a CBC when I arrived at 10pm and I was below 2. Over the course of the next 6-8 hrs I received two platelet transfusions which boosted my number up to 7. Prednisone was ordered at 90mg per day. I spent 4 days in the hospital and after the 3rd dose of prednisone I left with a count of 58. I was put on a taper for the prednisone and on May 6th my count was up to 189.the taper ended on the 14th. on the evening of the 17th I noticed a few Patechia while I was out of town.. So I finished work the next day and drove 5hrs home and called the hematologists office while I was driving. they ordered stat blood work to be done on me as soon as I could get to the hospital lab. my count was back down to 3. So I got to spend a couple more days in the hospital. I am back on the prednisone for a longer course, and we'll see what happens. my platelet count when they sprung me on Sunday was 19. Two years ago pre ITP a CBC during a normal physical showed my platelets at 398. ITP was the diagnosis because after taking what felt like half of my blood for testing for everything up to and including Ebola, and removing a nice big piece of my hip to look at, they could find nothing wrong. The nice little red dot are the only symptoms that really has shown up, I have not felt ill at all during all the fun and games. Yes, if you are wondering I am a horrible patient, and have trouble sitting still. It still amazes me that I have now walked into the hospital twice in a very short period of time to find out I was classified as in critical condition, and didn't feel bad at all. Should be interesting to see how things progress. 5/21/2013 1:16am who needs sleep when there's Prednisone.
Post 5 - By: Shannon - Post Date: 5/2/2013
I was diagnosed with ITP and Anemia a few days ago with a platelet count of 4. I had a severe case of Henoch Schonlein Purpura for 11 years as a child into my early 20's. I'm wondering if the ITP could possibly be related? I'm in OKC and may be interested in the clinical study.

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