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Recent Entries

Post 11 - By: Judy Norman - Post Date: 8/5/2014
I am practicing in a limited location in Cambodia. We have a 24 y/o, 3 mos postpartum, who came in with BP 160/110, evidence of stroke / neurologic dysfunction, and thrombocytopenia plts 14000. She was never diagnosed during pregnancy or delivery with complications. She began having neurologic signs about 6-8 weeks after delivery. She was treated at the govt hospital with blood transfusions several times but no other treatment. Thoughts? We have limited access to blood and basic meds, no IVIG / dialysis/ other. Thanks
Post 12 - By: Milika Tueli - Post Date: 7/13/2014
Hi. I have a friend who is in a coma since last Sunday 5th July. The reason being is she has a few blood clots between her skull and the layer that's protecting her brain. According to doctors she needs her platelet count to increase so that they may operate on her to remove the clot so eventually she may wake up.Her count had increased to 88000 on Friday. A friend went to visit her yesterday (Saturday) came back with the news that her count had gone down to 4000 overnight. Is there anyway you could contact her doctors and give some advise? You could help save her life. She's a mom of 2 little boys.please!!!
Post 13 - By: Jimmy Morris Jr - Post Date: 6/10/2014
I have been battling with TTP since 2004 and lately I have had a platelet count of 5,000 and needing direction
Post 14 - By: Barney - Post Date: 6/3/2014
Thank you, thank you, thank you. I was just diagnosed at 58 with ITP as am very scared. This site has been a boon. My Hematologist told me about it and it has helped educate me greatly, things never happen in a vacuum, all this happened just as I was planning to fly back to my take care of my Mum and Dad due to her diagnosis of Alzheimer's. What a dilemma, something I hope my Hematologist can help me with. Thanks again for this thoughtful site. And yes, the side effects of Steroids are simply awful! Kindest Regards, Barney
Post 15 - By: Ashlee - Post Date: 4/29/2014
Hello, I wish I had read this story years ago I have a rear form of itp too that my fathers family and my brothers have. I have a constant count of 20 and my brothers that are twins have a count that stays around 10 we experience a lot of the same doctors freaking out and wanting to do treatments my mother was always against it even when I had a c section my mother donated her own platelets for me and everything went smoothly even though the doctors tried there best to put the fear of god in me!!! Its nice knowing your not alone with this! Thank you for your story

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