We have created this Guestbook to allow our website visitors to ask questions and express their opinions. These comments are a valuable source of information about platelet disorders. We may respond to some of the inquiries when it is appropriate, but we will not respond to most questions or comments. The Guestbook cannot be a source for medical advice; patients must get their medical advice from their doctor.
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|Post 101 - By: pam - Post Date: 8/20/2010|
|I have a dear friend that has been diagnosed with Jak2 and in her case she her bone marrow result said it was a chromosone issue. She is 52 years and is taking medicine to try to get her platlets in order. Is there any thing else she can do medically or diet wise to try to get this under control? At first she a cancer pill and her plates came down but they have gone back up and keep going back and forth. Thank you
|Post 102 - By: phyllis holloway - Post Date: 8/19/2010|
|I am an survivor of ITP, due to the knowledge of Dr. James George...He is the best!!!
|Post 103 - By: Lisa Randle - Post Date: 8/12/2010|
|I was diagnose with TTP June 15 2010. I want to no how your body feels after your in remission what is normal and what is not?
|Post 104 - By: Nikkole Grissom - Post Date: 8/11/2010|
|Dr. George is my Hero....I own my life to him
|Post 105 - By: Michele - Post Date: 8/1/2010|
|What a wonderful website and your explanation of TTP-HUS was so easy to understand. I will certainly be giving it to our pediatricians. Our son was 15 months old(now 5) when he was in ICU with TTP. Since then we have moved and doctor after doctor is not comfortable giving our son his immunizations. He had no renal involvement. He had Plasma Pheresis for five days, a platelet transfusion and two blood transfusions. Do you have any documentation of problems after discharge that might be linked to having TTP? My son has severe constipation since the hospital stay, as well as, white spots(like vitiligo) and patches on skin. He is still easily tired and looks pale at different moments. We understand that a relapse is unlikely but, as you know from your studies, you are always on the look out. We were told IF it would happen, it would happen within 8 years but it would be highly unlikely to have another episode. He was at Miami Children's Hospital.
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