We have created this Guestbook to allow our website visitors to ask questions and express their opinions. These comments are a valuable source of information about platelet disorders. We may respond to some of the inquiries when it is appropriate, but we will not respond to most questions or comments. The Guestbook cannot be a source for medical advice; patients must get their medical advice from their doctor.
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|Post 111 - By: velma D. Falls - Post Date: 7/15/2010|
|I have read all the info on studies with patients, is there a way updates can be gotten from the patients? Or new research info for TTP which I have and have gone through plasma exchanges, Rituxum, now vitchristine and maybe removing my spleen. It seen as if my body is not accepting any of the treatments. If you have anything you can share with me I would appreciate it.
|Post 112 - By: peter mcphedran - Post Date: 7/10/2010|
|thank you for putting this information on line....is it also published elsewhere where the explanations for the columns are easier to track down?/pmcp
|Post 113 - By: Margaret Romriell - Post Date: 6/30/2010|
|I have Hepc and have been on TX for it my Platelet is 45.
|Post 114 - By: James Bluey - Post Date: 6/28/2010|
|I'm accually undergoing treatment for TTP as I type this. I was hospitalized for 25 days, had 3 strokes, and at least 2 seizures. but I've been on outpatient pheresis for 2 full weeks now and my numbers have stablized in a normal range (177000). I've started a taper on my prednisone. thats my news for today :-)
|Post 115 - By: Mark - Post Date: 6/16/2010|
|Are there ANY immunoadsorption protein A products available in the United States for treatment of Hemolytic-Uremic Syndrome?
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