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We have created this Guestbook to allow our website visitors to ask questions and express their opinions. These comments are a valuable source of information about platelet disorders. We may respond to some of the inquiries when it is appropriate, but we will not respond to most questions or comments. The Guestbook cannot be a source for medical advice; patients must get their medical advice from their doctor.




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Recent Entries

Post 121 - By: Marlene - Post Date: 3/10/2010
In 2008 Our family lost an angel to TTP- A disease that no one knows exist except when it touches their loved ones. It is not reconizged like the cancer family. I am still asking what, why and how this happened? to find little vague answers. My thoughts and prayers goes out to those with this disease and wonder if my angel would have wanted to live carry this around? Before passing with tears in her eyes is "I'm Scared, I don't want to have Cancer." she didn't even realize two days later she would surcom to complications of TTP. Please find a cure:)for the ones that know and the ones yet to find out.
Post 122 - By: JULIA FEARING - Post Date: 3/6/2010
SUFFERD SINUS VEINUS THROMBOSIS IN MUNICH,GERMANY IN 1996. WAS IN ANINDUCED COMA FOR WKS MY DDCTORS THERE SPECULATED THAT IT WAS DUE TO OV
Post 123 - By: jacque jj - Post Date: 2/23/2010
Mom had a 3x by pass .. no stroke no heart attack prior or after. That was 02/04/10 - today is 02/23/10 we are still waiting for her to come out of a minamal consience state (total of 10 min in and out per day -- will look, follow person and sound, smile, raise eybrows,) 6 days ago we started treatment for the diagnosis of TTP HUS. Moms mental status has not changed. We have several specialist following and getting mixed messages between Nuro and Hemotolgist.
Post 124 - By: sylvia Varnadore - Post Date: 2/20/2010
I am interested in the tpo drugs. I have read your artical in the Platelet news and I am looking for a doctor who I can come for treatment for ITP. I am 62 and Just started treatment in Fort Smith,ARK and I can travel to OKC. Thanks Sylvia Varnadore
Post 125 - By: Becky Wirtz - Post Date: 2/11/2010
Our daughter is 13 and has chronic severe ITP. She has been through WinRoh, IVIG, rituximab, methypred (IV0 high doses of pred, and a spleenectomy last week. The spleenectomy does not appear ot be successful in treating her ITP. Do you know anything about noni fruit and selenium? I spoke with a woman that has had very good result with those two items. Can they be harmful? It is very difficult to find any good information on side effects or results of any sort on alternative treatments especially. I appreciate your time. Becky

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