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Recent Entries

Post 131 - By: jacque jj - Post Date: 2/23/2010
Mom had a 3x by pass .. no stroke no heart attack prior or after. That was 02/04/10 - today is 02/23/10 we are still waiting for her to come out of a minamal consience state (total of 10 min in and out per day -- will look, follow person and sound, smile, raise eybrows,) 6 days ago we started treatment for the diagnosis of TTP HUS. Moms mental status has not changed. We have several specialist following and getting mixed messages between Nuro and Hemotolgist.
Post 132 - By: sylvia Varnadore - Post Date: 2/20/2010
I am interested in the tpo drugs. I have read your artical in the Platelet news and I am looking for a doctor who I can come for treatment for ITP. I am 62 and Just started treatment in Fort Smith,ARK and I can travel to OKC. Thanks Sylvia Varnadore
Post 133 - By: Becky Wirtz - Post Date: 2/11/2010
Our daughter is 13 and has chronic severe ITP. She has been through WinRoh, IVIG, rituximab, methypred (IV0 high doses of pred, and a spleenectomy last week. The spleenectomy does not appear ot be successful in treating her ITP. Do you know anything about noni fruit and selenium? I spoke with a woman that has had very good result with those two items. Can they be harmful? It is very difficult to find any good information on side effects or results of any sort on alternative treatments especially. I appreciate your time. Becky
Post 134 - By: Heather Money - Post Date: 2/8/2010
I attended the suppot group meeting in Columbus Ohio and my mother and I got to meet Dr. Georg finally. Dr. Cataland speaks so highly of him and all of the information that her shared was very informative. Thank you!
Post 135 - By: gabrielle albo - Post Date: 1/28/2010
i have ttp and ttphus i just wnt to now if it will ever go away or if it will be here intill i die

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