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Recent Entries

Post 136 - By: Marlene - Post Date: 3/10/2010
In 2008 Our family lost an angel to TTP- A disease that no one knows exist except when it touches their loved ones. It is not reconizged like the cancer family. I am still asking what, why and how this happened? to find little vague answers. My thoughts and prayers goes out to those with this disease and wonder if my angel would have wanted to live carry this around? Before passing with tears in her eyes is "I'm Scared, I don't want to have Cancer." she didn't even realize two days later she would surcom to complications of TTP. Please find a cure:)for the ones that know and the ones yet to find out.
Post 137 - By: JULIA FEARING - Post Date: 3/6/2010
Post 138 - By: jacque jj - Post Date: 2/23/2010
Mom had a 3x by pass .. no stroke no heart attack prior or after. That was 02/04/10 - today is 02/23/10 we are still waiting for her to come out of a minamal consience state (total of 10 min in and out per day -- will look, follow person and sound, smile, raise eybrows,) 6 days ago we started treatment for the diagnosis of TTP HUS. Moms mental status has not changed. We have several specialist following and getting mixed messages between Nuro and Hemotolgist.
Post 139 - By: sylvia Varnadore - Post Date: 2/20/2010
I am interested in the tpo drugs. I have read your artical in the Platelet news and I am looking for a doctor who I can come for treatment for ITP. I am 62 and Just started treatment in Fort Smith,ARK and I can travel to OKC. Thanks Sylvia Varnadore
Post 140 - By: Becky Wirtz - Post Date: 2/11/2010
Our daughter is 13 and has chronic severe ITP. She has been through WinRoh, IVIG, rituximab, methypred (IV0 high doses of pred, and a spleenectomy last week. The spleenectomy does not appear ot be successful in treating her ITP. Do you know anything about noni fruit and selenium? I spoke with a woman that has had very good result with those two items. Can they be harmful? It is very difficult to find any good information on side effects or results of any sort on alternative treatments especially. I appreciate your time. Becky

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