We have created this Guestbook to allow our website visitors to ask questions and express their opinions. These comments are a valuable source of information about platelet disorders. We may respond to some of the inquiries when it is appropriate, but we will not respond to most questions or comments. The Guestbook cannot be a source for medical advice; patients must get their medical advice from their doctor.
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|Post 136 - By: gabrielle albo - Post Date: 1/28/2010|
|i have ttp and ttphus i just wnt to now if it will ever go away or if it will be here intill i die
|Post 137 - By: vml - Post Date: 1/28/2010|
|I am thankful to find this website! a few days ago I went to the ER because of acute illness, during which the thrombocytopenia was diagnosed. I meet with the consult oncologist tomorrow; I feel more knowledgeable now about the wide range of possibilities. I have been complaining of symptoms in increasing severity over the last few months.
QUESTION: I had my H1N1 vaccine on Jan 14. SOME EMEDICINE ARTICLES (link) INDICATE THAT VACCINATIONS CAN PRECIPITATE AN ACUTE EPISODE, and I wonder if you have more information on this?
|Post 138 - By: MaryJo Reynolds - Post Date: 1/26/2010|
|I attended the TTP conference in Columbus, Ohio. I found it very informative and interesting. I was excited to meet Dr George, Dr. Cataland and Dr. Wu. I am looking forward to the next one in June.
|Post 139 - By: Chinese Bradley - Post Date: 1/15/2010|
|I was diagnosed with TTP Oct. 2009 with no other complications, thank God. I immediately began Plasma treatments and took my last one Jan. 14, 2010. My platlet and LDH counts seems to be stable but my doctor is concerned about me returning to work to soon. I feel great and have felt this way during the entire process. I feel that I'm ready to return to work but don't want to move to quick. Should I be taking this likely since I feel great?
|Post 140 - By: Anil Muthyala - Post Date: 1/13/2010|
|My son got admitted into the hospital last week. His platelets count was 2000. My son is 10 weeks old. He had no signs other that 3-4 red spots on forehead. Doctors are suspecting its ITP. But it is not conformed. The hematologist had put him on IVIG for 2 days but the count did not improve. On 3rd day doctor put him on WinRho. On 4th day the count went up to 13,000. They put him in observation for 1 day without any medication and after that the count is 10,000. Doctor told us, that count can vary. It can go up and down a little and asked us to go home. We got discharged today. Doctor asked us to come back after 3 days for blood test and of course in the mean time if we see any symptoms asked us to go to emergency. In the mean time there were many many blood tests. What we were told was the other cell counts are all normal except the platelets. The initial bone marrow test showed negative for Leukemia. They are doing more DNA(genetic) testing on bone marrow. I am not sure what they are looking for. Doctor was saying something about viscot syndrome. We are really scared and don't know what to do other than listening to doctor. Also our doc (hematologist) told that after 3 days if the counts remain same or go down we might need to put my son on steroids. BTW my son is admitted into CHOC (St Joseph hospital in orange county)
We would like to know how serious is this condition. Is this life threatening? What question do I need to ask doctor. I really appreciate if you could respond.
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