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Guestbook

We have created this Guestbook to allow our website visitors to ask questions and express their opinions. These comments are a valuable source of information about platelet disorders. We may respond to some of the inquiries when it is appropriate, but we will not respond to most questions or comments. The Guestbook cannot be a source for medical advice; patients must get their medical advice from their doctor.




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Recent Entries

Post 136 - By: Becky Wirtz - Post Date: 2/11/2010
Our daughter is 13 and has chronic severe ITP. She has been through WinRoh, IVIG, rituximab, methypred (IV0 high doses of pred, and a spleenectomy last week. The spleenectomy does not appear ot be successful in treating her ITP. Do you know anything about noni fruit and selenium? I spoke with a woman that has had very good result with those two items. Can they be harmful? It is very difficult to find any good information on side effects or results of any sort on alternative treatments especially. I appreciate your time. Becky
Post 137 - By: Heather Money - Post Date: 2/8/2010
I attended the suppot group meeting in Columbus Ohio and my mother and I got to meet Dr. Georg finally. Dr. Cataland speaks so highly of him and all of the information that her shared was very informative. Thank you!
Post 138 - By: gabrielle albo - Post Date: 1/28/2010
i have ttp and ttphus i just wnt to now if it will ever go away or if it will be here intill i die
Post 139 - By: vml - Post Date: 1/28/2010
I am thankful to find this website! a few days ago I went to the ER because of acute illness, during which the thrombocytopenia was diagnosed. I meet with the consult oncologist tomorrow; I feel more knowledgeable now about the wide range of possibilities. I have been complaining of symptoms in increasing severity over the last few months. QUESTION: I had my H1N1 vaccine on Jan 14. SOME EMEDICINE ARTICLES (link) INDICATE THAT VACCINATIONS CAN PRECIPITATE AN ACUTE EPISODE, and I wonder if you have more information on this? Thank you.
Post 140 - By: MaryJo Reynolds - Post Date: 1/26/2010
I attended the TTP conference in Columbus, Ohio. I found it very informative and interesting. I was excited to meet Dr George, Dr. Cataland and Dr. Wu. I am looking forward to the next one in June.

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