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|Post 141 - By: Mia Hayes - Post Date: 11/15/2009|
|Thank you very much for this site and to all that have contributed. I was diagnosed with TTP in 02/03 and have had 5 episodes. It's nice to know that someone not only has heard of the disorder but exactly understands the disorder. I wouldn't wish this disorder on my worst enemy.
|Post 142 - By: Angela Elrod - Post Date: 11/12/2009|
|Hello Dr and team,
Yes I definitely agree this website and your information is the best and easiest to understand. I was diagnosed with TTP after giving birth in Feb.2009. I hemmorrhoged out and had congestive heart failure, pulmonary failure, and kidney failure all at the same time. I was in a coma for 10 days and the fifth day into it, Dr. Veracruze diagnosed the TTP. I went through 36 plasma exchanges every day washing 5 liters of my blood at a time and I do believe you were contacted for input because it wasn't working. Then I was given Vincristine and Rytuxin (together) for 4 weeks and that finally put me into remission. After 9 wks of being in the hospital, I was glad to get home to my baby and family at that. My kidneys and heart have bounced back but I am suffering from horrific migraines on a weekly basis. Are the migraines expected or common in TTP patients? My anxiety and PTSD is pretty bad because I'm in fear about relapse especially with the flu paranoia and am haunted by the nightmares I had in the coma. My bloodwork is still being monitored, it was a weekly basis and now monthly.
|Post 143 - By: DOROTHY SMITH - Post Date: 10/28/2009|
|I was diagosed about 4 years ago with ITP, after several bouts with low platelats and hospitalization, I have been in remission as long as i remain on steriods.
|Post 144 - By: Mary E. Goldsberry - Post Date: 10/28/2009|
|My name is Mary E. and i have never heard of this before until October 2005, it caused me to have a stroke, but GOD let me live the doctor said that i had a good chance of dying I had to get some plasma I dont know how to spell the term for it (plasmaphorrsis)at university of Louisville(Great Hospital)everyone was nice to me. I had never heard of that before i went to Louisville. They say it could come back every 10 years.I want to know COULD IT COME BACK EVERY 10 YEARS. AND SHOULD I WORRY ABOUT MY KIDS AND GRANDSON GETTING IT. i would like more information on this T.T.P. Is there a book that i can get that has all the information in it. I could write more but i better not. i do want to say I spent 2 months in the hospital over it. they said that my blood was dirty I dont remember the first few week in the hopsital. THANK YOU MARY E. GOLDSBERRY
|Post 145 - By: Stacy - Post Date: 10/22/2009|
|What is the difference between ITP and TTP? Laymanâ€™s terms please. My uncle has been diagnosed with TTP and is receiving donor plasma. His platelet count was 11,000 yesterday and 30,000 today after plasma exchange. Is this a positive increase? Does this suggest there could be complete recovery or is it to early to tell? We have been told there is damage to his kidneys, liver, and heart. Can all this damage be caused by TTP? Hospital doctors are very busy and unable to answer questions thoroughly. We had never even heard of TTP and now my uncle could die from it; healthy one day, dying the next. We are all very worried. Your web site has been the easiest to understand and very informative. We would appreciate it if you would answer the above mentioned questions. Thanks.
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