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Recent Entries

Post 146 - By: Jenny - Post Date: 12/24/2009
My brother passed away on 12 Dec 09 of TTP and he also had pneumonia and Acute Respiratory Distress Syndrome. His BP was to low to do the plasma exchange.Prior to him becoming ill on the 29th of Nov he was a very healthy 60 year old man with no medical problems. He NEVER drank alcohol, smoked or used any drugs.He ate well and exercised dily. For him to become so ill and die so quickly was such a shock and very devastating.
Post 147 - By: sameer aher - Post Date: 12/6/2009
My mother was diagnosed with TTP and nRnp,Sm antibodies were positive.Plasma exchange was initiated.Blood counts didnt improve after 1 week.Doctors started Rituxan.The following day,plasma infusion was given and not plasma exchange to prevent Rituximab washout.Then they detected MRSA in ETT secretion.She was in septic shock.After 2 days,she died.What was the cause of death?Was it lack of response to TTP treatment or septic shock or SLE not diagnosed?
Post 148 - By: sophie pooler - Post Date: 12/3/2009
myplatlett count is 48000 iam on b12 injection but i stilcraving fof ice and hav tinling in my legs
Post 149 - By: Dave wells - Post Date: 12/2/2009
I take a blood preasure med. Called Diovan. Could it cause a drop in my platelet count? My count has been 85,000 to 105, 000 for the past while.
Post 150 - By: Kem R. Britton - Post Date: 12/2/2009
Does AnyOne know of any Health Insurance Company that would cover Me after having TTP? Platelet count was 4,000 on June 29,09 but with about 6 treatments I have averaged 328,000. Hope Everyone else is having as Good as Luck as I did..I Thank the Lord, Doctors, and Nurses Daily My Prayers go out to All suffering with this Disease..

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