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Recent Entries

Post 146 - By: Anil Muthyala - Post Date: 1/13/2010
My son got admitted into the hospital last week. His platelets count was 2000. My son is 10 weeks old. He had no signs other that 3-4 red spots on forehead. Doctors are suspecting its ITP. But it is not conformed. The hematologist had put him on IVIG for 2 days but the count did not improve. On 3rd day doctor put him on WinRho. On 4th day the count went up to 13,000. They put him in observation for 1 day without any medication and after that the count is 10,000. Doctor told us, that count can vary. It can go up and down a little and asked us to go home. We got discharged today. Doctor asked us to come back after 3 days for blood test and of course in the mean time if we see any symptoms asked us to go to emergency. In the mean time there were many many blood tests. What we were told was the other cell counts are all normal except the platelets. The initial bone marrow test showed negative for Leukemia. They are doing more DNA(genetic) testing on bone marrow. I am not sure what they are looking for. Doctor was saying something about viscot syndrome. We are really scared and don't know what to do other than listening to doctor. Also our doc (hematologist) told that after 3 days if the counts remain same or go down we might need to put my son on steroids. BTW my son is admitted into CHOC (St Joseph hospital in orange county) We would like to know how serious is this condition. Is this life threatening? What question do I need to ask doctor. I really appreciate if you could respond.
Post 147 - By: Em - Post Date: 1/13/2010
My fiance has had ITP for some time now. We were wondering if anyone might know of an insurance company that might cover him. As far as we can tell he is out of luck but maybe someone out there might know something we've missed.
Post 148 - By: Virginia Apker - Post Date: 1/11/2010
I was diagnosed with ITP in July of 2009. My Doctor does not seem to want to try any oral medications,and continues to talk only removal of the spleen. How do I contact the office of Dr. George for an appt for a second opinion?
Post 149 - By: Gwen Blankenship - Post Date: 1/7/2010
I look forward to Jan. 21st in Columbus, Ohio @ the Ohio State University. I emailed you in 2000 concerning my 1st TTP episode. You gave to me great in sight concerning my condition and this disease. I am now a patient of Doc. Sperio Cataland. Thank you for the work all of you do. I will see at the 2nd reunion. Gwen Blankenship
Post 150 - By: Cheryl - Post Date: 1/6/2010
My husband was diagnosed with TTP in Jan 08. He has the Adamst13 deficiency. He has psoriosis, diabetes, and a small blockage in his heart. He was treated with approximately 35 plasma exchanges from Jan-May 08. He has had three strokes since Oct. 08 with the most recent one in Nov. 09. Neither his hematologist or neurologist is sure of the cause of the strokes. We are still looking for answers and would like to communicate with others with this disease. Thanks for this site.

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