We have created this Guestbook to allow our website visitors to ask questions and express their opinions. These comments are a valuable source of information about platelet disorders. We may respond to some of the inquiries when it is appropriate, but we will not respond to most questions or comments. The Guestbook cannot be a source for medical advice; patients must get their medical advice from their doctor.
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|Post 16 - By: M. Wright - Post Date: 4/21/2012|
|I have had low platelets for almost 30 years. I started out with 96,000 and have gradually dropped over the years. I gradually developed a mild macrocytic anemia. I self diagnosed myself as ITP for years but when the anemia became more obvious I worried about MDS. I finally got my first bone marrow when platelet count dropped to 27k. I was diagnosed with low risk MDS. My question is : Have you seen previous cases of ITP evolve into MDS? How often? Might the MDS have evolved from chronic immune stimulation and mutation of rapidly dividing megakaryocytic stem cells? Might I be more or less likely to respond to NPlate or Promacta or vidaza?
|Post 17 - By: Gianna Caruso - Post Date: 4/16/2012|
|Newly diagnosed...still in the hospital!
|Post 18 - By: Angie S - Post Date: 3/7/2012|
|Can anyone tell me what the pros and cons of getting pregnant are when you have TTP? Is it possible and if so, how risky is it?
|Post 19 - By: tina benzing - Post Date: 3/7/2012|
|i have 2 childen who have been diagnosed with congenital TTP
|Post 20 - By: Theresa Melvin - Post Date: 2/11/2012|
|Got TTP 8/30/11 after hip replcement. Need other hip replaced. I hear that orthopedic surgery brings on TTP. What do you know about that?
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