We have created this Guestbook to allow our website visitors to ask questions and express their opinions. These comments are a valuable source of information about platelet disorders. We may respond to some of the inquiries when it is appropriate, but we will not respond to most questions or comments. The Guestbook cannot be a source for medical advice; patients must get their medical advice from their doctor.
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|Post 151 - By: Bernadette - Post Date: 9/18/2009|
|The more information the better regarding platelets, back in 2003 I was beginning to feel different worried about my health. I usually get a physical yearly that year in 2004 docotors discovered I had high platelets. I remember the doctor I went to told me it was cancer I flipped out. He was not very caring. I went to another doctor and she explained it in a better manner and gave me a bonemarrow test. I do not have cancer but the high platelets are w/me for the rest of my life. I treat it daily and try to do the best I can to stay well. The more information about this the better. There are some questions I need answered by my doctors but its good to have this here to share with others.
|Post 152 - By: sonia - Post Date: 9/15/2009|
|after removing the splin an beening almost 4 years ok,with my platelets on the 200, now I getting bruces and rash what did that means
|Post 153 - By: Kimberly Badger-Campbell - Post Date: 9/11/2009|
|I just lost my Mother to TTP. She lived 3 years with it. I would love to have you find why this happens. I due believe that my Mother's was caused by a percription she was taking. My Mother was to young for this and I am always reading up on TTP.
|Post 154 - By: Mila - Post Date: 9/4/2009|
I think this is a really good site for info on TTP. I am currently in my senior high school year and I need to write an essay on TTP for school. I was hoping that you could help me. Please contact me if you want to help me. I am looking for raw data on TTP that I could analyse. As a student I don't have any access to this and I hope this registry could help me. I am so interested in TTP, because my little sister died last year in October when she was four due to TTP. Its still a big shock to me that she's dead, and I was hoping this Essay will help me overcome my sorrow. So please, if you think it would be possible for me to get some raw data, please contact me. I really don't want to change my topic, and I would have to, if I can't get any data to analyse. Since this is just a high school essay, I will probably won't be writing any deep scientific observations nor publish anything. I just need to find some kind of correlation or so, so that I can put up a thesis.
Thanks for your help.
Best Greetings, Mila Baer
|Post 155 - By: paul gergic k - Post Date: 9/1/2009|
|i suddenly got ttp on 1 4 06 i was treated but i still have effect that are getting worse the doctors are treating me .they donot help. because my probles are getting to the point. that iam out of control. i have so many things happening that the doctors are treating the sytoms not problems.iwas was treated with phasaum exchange. it work but the after effects are realy making me GOOD FOR NOTHING.
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