We have created this Guestbook to allow our website visitors to ask questions and express their opinions. These comments are a valuable source of information about platelet disorders. We may respond to some of the inquiries when it is appropriate, but we will not respond to most questions or comments. The Guestbook cannot be a source for medical advice; patients must get their medical advice from their doctor.
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|Post 151 - By: Kimberly Badger-Campbell - Post Date: 9/11/2009|
|I just lost my Mother to TTP. She lived 3 years with it. I would love to have you find why this happens. I due believe that my Mother's was caused by a percription she was taking. My Mother was to young for this and I am always reading up on TTP.
|Post 152 - By: Mila - Post Date: 9/4/2009|
I think this is a really good site for info on TTP. I am currently in my senior high school year and I need to write an essay on TTP for school. I was hoping that you could help me. Please contact me if you want to help me. I am looking for raw data on TTP that I could analyse. As a student I don't have any access to this and I hope this registry could help me. I am so interested in TTP, because my little sister died last year in October when she was four due to TTP. Its still a big shock to me that she's dead, and I was hoping this Essay will help me overcome my sorrow. So please, if you think it would be possible for me to get some raw data, please contact me. I really don't want to change my topic, and I would have to, if I can't get any data to analyse. Since this is just a high school essay, I will probably won't be writing any deep scientific observations nor publish anything. I just need to find some kind of correlation or so, so that I can put up a thesis.
Thanks for your help.
Best Greetings, Mila Baer
|Post 153 - By: paul gergic k - Post Date: 9/1/2009|
|i suddenly got ttp on 1 4 06 i was treated but i still have effect that are getting worse the doctors are treating me .they donot help. because my probles are getting to the point. that iam out of control. i have so many things happening that the doctors are treating the sytoms not problems.iwas was treated with phasaum exchange. it work but the after effects are realy making me GOOD FOR NOTHING.
|Post 154 - By: Magda El-Nokaly - Post Date: 8/29/2009|
|Please send me the updated list of the Foods and drugs that induce ITP. I was doing well on 5mgm every other day but I had to take Neurontin and Klononpin several months later my platelets count dropped to 20,000. What can I take as anti axiety without lowering my platelets?
|Post 155 - By: JTH - Post Date: 8/27/2009|
|Dear Dr George and Team
I'm a 44 year old female and September 2005 I was diagnosed with TTP, with platelet count of 8 and hemogl dropped to 50. December of 2006 I was back in the ER that confirmed a relapsed. Today, I'm still on 10 mg prednisone and 100 mg of Imuran, soon the prednisone will be reduced and hopefully Imuran will do it's job. I also have a mixed connective tissue disease, and hypothyroid.
I've started a fundraiser to raise funds and awareness for TTP, I would like to expand and start a support group as well start a national organization is there anyone I can speak to that can be role model for starting a ttp support group.
Hope to hear from you
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