We have created this Guestbook to allow our website visitors to ask questions and express their opinions. These comments are a valuable source of information about platelet disorders. We may respond to some of the inquiries when it is appropriate, but we will not respond to most questions or comments. The Guestbook cannot be a source for medical advice; patients must get their medical advice from their doctor.
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|Post 151 - By: Kem R. Britton - Post Date: 12/2/2009|
|Does AnyOne know of any Health Insurance Company that would cover Me after having TTP? Platelet count was 4,000 on June 29,09 but with about 6 treatments I have averaged 328,000. Hope Everyone else is having as Good as Luck as I did..I Thank the Lord, Doctors, and Nurses Daily My Prayers go out to All suffering with this Disease..
|Post 152 - By: Nate - Post Date: 11/28/2009|
|I was diagnosed 6-12-08 returned to work 7-20-09 had 105 exchanges over 1000 units plasma 19 chemos of rituxan tested monthly am I over this?
|Post 153 - By: Mia Hayes - Post Date: 11/15/2009|
|Thank you very much for this site and to all that have contributed. I was diagnosed with TTP in 02/03 and have had 5 episodes. It's nice to know that someone not only has heard of the disorder but exactly understands the disorder. I wouldn't wish this disorder on my worst enemy.
|Post 154 - By: Angela Elrod - Post Date: 11/12/2009|
|Hello Dr and team,
Yes I definitely agree this website and your information is the best and easiest to understand. I was diagnosed with TTP after giving birth in Feb.2009. I hemmorrhoged out and had congestive heart failure, pulmonary failure, and kidney failure all at the same time. I was in a coma for 10 days and the fifth day into it, Dr. Veracruze diagnosed the TTP. I went through 36 plasma exchanges every day washing 5 liters of my blood at a time and I do believe you were contacted for input because it wasn't working. Then I was given Vincristine and Rytuxin (together) for 4 weeks and that finally put me into remission. After 9 wks of being in the hospital, I was glad to get home to my baby and family at that. My kidneys and heart have bounced back but I am suffering from horrific migraines on a weekly basis. Are the migraines expected or common in TTP patients? My anxiety and PTSD is pretty bad because I'm in fear about relapse especially with the flu paranoia and am haunted by the nightmares I had in the coma. My bloodwork is still being monitored, it was a weekly basis and now monthly.
|Post 155 - By: Mary E. Goldsberry - Post Date: 10/28/2009|
|My name is Mary E. and i have never heard of this before until October 2005, it caused me to have a stroke, but GOD let me live the doctor said that i had a good chance of dying I had to get some plasma I dont know how to spell the term for it (plasmaphorrsis)at university of Louisville(Great Hospital)everyone was nice to me. I had never heard of that before i went to Louisville. They say it could come back every 10 years.I want to know COULD IT COME BACK EVERY 10 YEARS. AND SHOULD I WORRY ABOUT MY KIDS AND GRANDSON GETTING IT. i would like more information on this T.T.P. Is there a book that i can get that has all the information in it. I could write more but i better not. i do want to say I spent 2 months in the hospital over it. they said that my blood was dirty I dont remember the first few week in the hopsital. THANK YOU MARY E. GOLDSBERRY
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