We have created this Guestbook to allow our website visitors to ask questions and express their opinions. These comments are a valuable source of information about platelet disorders. We may respond to some of the inquiries when it is appropriate, but we will not respond to most questions or comments. The Guestbook cannot be a source for medical advice; patients must get their medical advice from their doctor.

Sign The Guestbook

Required but will not
show to the public.
To be sure that all of the questions, opinions, and comments are appropriate for our website, each one is reviewed by our staff before it is posted on the Guestbook.
Human Check (provided by Carnegie Mellon University)

If you have trouble seeing words click the refresh button above.

Recent Entries

Post 151 - By: Nate - Post Date: 11/28/2009
I was diagnosed 6-12-08 returned to work 7-20-09 had 105 exchanges over 1000 units plasma 19 chemos of rituxan tested monthly am I over this?
Post 152 - By: Mia Hayes - Post Date: 11/15/2009
Thank you very much for this site and to all that have contributed. I was diagnosed with TTP in 02/03 and have had 5 episodes. It's nice to know that someone not only has heard of the disorder but exactly understands the disorder. I wouldn't wish this disorder on my worst enemy.
Post 153 - By: Angela Elrod - Post Date: 11/12/2009
Hello Dr and team, Yes I definitely agree this website and your information is the best and easiest to understand. I was diagnosed with TTP after giving birth in Feb.2009. I hemmorrhoged out and had congestive heart failure, pulmonary failure, and kidney failure all at the same time. I was in a coma for 10 days and the fifth day into it, Dr. Veracruze diagnosed the TTP. I went through 36 plasma exchanges every day washing 5 liters of my blood at a time and I do believe you were contacted for input because it wasn't working. Then I was given Vincristine and Rytuxin (together) for 4 weeks and that finally put me into remission. After 9 wks of being in the hospital, I was glad to get home to my baby and family at that. My kidneys and heart have bounced back but I am suffering from horrific migraines on a weekly basis. Are the migraines expected or common in TTP patients? My anxiety and PTSD is pretty bad because I'm in fear about relapse especially with the flu paranoia and am haunted by the nightmares I had in the coma. My bloodwork is still being monitored, it was a weekly basis and now monthly.
Post 154 - By: Mary E. Goldsberry - Post Date: 10/28/2009
My name is Mary E. and i have never heard of this before until October 2005, it caused me to have a stroke, but GOD let me live the doctor said that i had a good chance of dying I had to get some plasma I dont know how to spell the term for it (plasmaphorrsis)at university of Louisville(Great Hospital)everyone was nice to me. I had never heard of that before i went to Louisville. They say it could come back every 10 years.I want to know COULD IT COME BACK EVERY 10 YEARS. AND SHOULD I WORRY ABOUT MY KIDS AND GRANDSON GETTING IT. i would like more information on this T.T.P. Is there a book that i can get that has all the information in it. I could write more but i better not. i do want to say I spent 2 months in the hospital over it. they said that my blood was dirty I dont remember the first few week in the hopsital. THANK YOU MARY E. GOLDSBERRY
Post 155 - By: DOROTHY SMITH - Post Date: 10/28/2009
I was diagosed about 4 years ago with ITP, after several bouts with low platelats and hospitalization, I have been in remission as long as i remain on steriods.

Prev Page Next Page
pagelist: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44



The information included in this website is for educational purposes only. The designers and operators of this site take no responsibility for the things you may do with this information. For advice on your unique medical condition, please consult your health care professional. By going further into this website you acknowledge that you have read and understood this disclaimer.