We have created this Guestbook to allow our website visitors to ask questions and express their opinions. These comments are a valuable source of information about platelet disorders. We may respond to some of the inquiries when it is appropriate, but we will not respond to most questions or comments. The Guestbook cannot be a source for medical advice; patients must get their medical advice from their doctor.
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|Post 156 - By: DOROTHY SMITH - Post Date: 10/28/2009|
|I was diagosed about 4 years ago with ITP, after several bouts with low platelats and hospitalization, I have been in remission as long as i remain on steriods.
|Post 157 - By: Stacy - Post Date: 10/22/2009|
|What is the difference between ITP and TTP? Laymanâ€™s terms please. My uncle has been diagnosed with TTP and is receiving donor plasma. His platelet count was 11,000 yesterday and 30,000 today after plasma exchange. Is this a positive increase? Does this suggest there could be complete recovery or is it to early to tell? We have been told there is damage to his kidneys, liver, and heart. Can all this damage be caused by TTP? Hospital doctors are very busy and unable to answer questions thoroughly. We had never even heard of TTP and now my uncle could die from it; healthy one day, dying the next. We are all very worried. Your web site has been the easiest to understand and very informative. We would appreciate it if you would answer the above mentioned questions. Thanks.
|Post 158 - By: Rae Noah - Post Date: 10/14/2009|
|This is a wonderful website and I thank you for it. I need to know what would eat up my platelets and how can I increase them. Mine run fro 60000 to 90,000
|Post 159 - By: Tracey - Post Date: 9/30/2009|
|My daughter passed away from Ttp on 8-29-09. She was diagnosed on 7-17-09. The dr on 7-12-09 said she had pre-eclampsia but she didnt get better after her emergency c-section. On the 4th day the dr transfered her b/c we requested it. She was in acute kidney failure an that dr said nothing was wrong with my daughter. He sat an watched her platelet count drop. Platelets were 100,000 b4 she had her baby and were 46,000 the next day. her cerationes were 1.1 b4 the baby and 1.8 the next day. He didnt want to transfer her. it took 2 more days after that 2 get him 2 transfer her. she barely had any platelets when we got her 2 the other hospital and her kidneys were a 5.5. I am going over all her hospital records an i need help understanding them. And she died less than 12 hours after a bone marrow biopsy. Can anyone help me understand some of the terms in her records? I would highly appreciate it. Thank you....
|Post 160 - By: George H Tischner Jr - Post Date: 9/26/2009|
|Dear Dr George,
I am a 39 yr old male in remission now since 2005.
I live in New York and was treated by Dr Seth at Hutington Hospital back in 2005. My sister has ITP and I had my bought with TTP as I stated above. I am constantly worried by the lingering affects of this affliction. FM is the most common residual as is the memory and sight loss issues. I have yet to see anything about those of us dealing with the lingering affects of TTP. Meritts to you and your staff and all you've done for this affliction. I wondering if you actually get this, if you ask the treating hospital for my info and could you look at my treatments of pheresys. I have notice that the problems that I am having might be from the speed at which my 1 1/2 treatment were done. Daily for 3 months straight. Followed up by 8 rounds of Rituxamab. Thank you for any consideration in my case.
TTP stands for
"T.he T. oughest P. eople"
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