We have created this Guestbook to allow our website visitors to ask questions and express their opinions. These comments are a valuable source of information about platelet disorders. We may respond to some of the inquiries when it is appropriate, but we will not respond to most questions or comments. The Guestbook cannot be a source for medical advice; patients must get their medical advice from their doctor.
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|Post 161 - By: Tracey - Post Date: 9/30/2009|
|My daughter passed away from Ttp on 8-29-09. She was diagnosed on 7-17-09. The dr on 7-12-09 said she had pre-eclampsia but she didnt get better after her emergency c-section. On the 4th day the dr transfered her b/c we requested it. She was in acute kidney failure an that dr said nothing was wrong with my daughter. He sat an watched her platelet count drop. Platelets were 100,000 b4 she had her baby and were 46,000 the next day. her cerationes were 1.1 b4 the baby and 1.8 the next day. He didnt want to transfer her. it took 2 more days after that 2 get him 2 transfer her. she barely had any platelets when we got her 2 the other hospital and her kidneys were a 5.5. I am going over all her hospital records an i need help understanding them. And she died less than 12 hours after a bone marrow biopsy. Can anyone help me understand some of the terms in her records? I would highly appreciate it. Thank you....
|Post 162 - By: George H Tischner Jr - Post Date: 9/26/2009|
|Dear Dr George,
I am a 39 yr old male in remission now since 2005.
I live in New York and was treated by Dr Seth at Hutington Hospital back in 2005. My sister has ITP and I had my bought with TTP as I stated above. I am constantly worried by the lingering affects of this affliction. FM is the most common residual as is the memory and sight loss issues. I have yet to see anything about those of us dealing with the lingering affects of TTP. Meritts to you and your staff and all you've done for this affliction. I wondering if you actually get this, if you ask the treating hospital for my info and could you look at my treatments of pheresys. I have notice that the problems that I am having might be from the speed at which my 1 1/2 treatment were done. Daily for 3 months straight. Followed up by 8 rounds of Rituxamab. Thank you for any consideration in my case.
TTP stands for
"T.he T. oughest P. eople"
|Post 163 - By: Laurie Nielsen - Post Date: 9/23/2009|
|Thanks so much for the anecdotal accounts of people with ITP. Our son was just given IViG as treatment for ITP, so it was good to see some different perspectives. Thanks again!
|Post 164 - By: gene courtright - Post Date: 9/20/2009|
|i am haveing teatments for low platelets and low wbc. i am on dacogen
are their any other treatments available?
|Post 165 - By: Bernadette - Post Date: 9/18/2009|
|The more information the better regarding platelets, back in 2003 I was beginning to feel different worried about my health. I usually get a physical yearly that year in 2004 docotors discovered I had high platelets. I remember the doctor I went to told me it was cancer I flipped out. He was not very caring. I went to another doctor and she explained it in a better manner and gave me a bonemarrow test. I do not have cancer but the high platelets are w/me for the rest of my life. I treat it daily and try to do the best I can to stay well. The more information about this the better. There are some questions I need answered by my doctors but its good to have this here to share with others.
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