We have created this Guestbook to allow our website visitors to ask questions and express their opinions. These comments are a valuable source of information about platelet disorders. We may respond to some of the inquiries when it is appropriate, but we will not respond to most questions or comments. The Guestbook cannot be a source for medical advice; patients must get their medical advice from their doctor.
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|Post 166 - By: Pam Rose - Post Date: 6/25/2009|
|I have essential Thrombocythemia. I am taking 11x500mg Hydroxycarbamide per week, and 1x75mg asprin every other day. I've read that Bromelain offers similar benefits to asprin without the heightened risk of bleeding. Could anyone suggest dosage of Bromelain or where I might find more information about it?
|Post 167 - By: david - Post Date: 6/19/2009|
|My Mother died of TTP in 1993 at 43 years young.Im still dealing with it....Esther'zSoN~DaVid
|Post 168 - By: Christina - Post Date: 6/17/2009|
|Dear Dr. George & Team and fellow readers,
PLEASE look further into the ITP/H-pylori connection. I had a terrible case of ITP a few years ago (lowest was count of 1,000 platelets), tested positive for H-pylori, took the antibotics with IVIG and my counts went up AND STAYED UP. I was stuck in the hospital for 2 months -- which seemed like years. I have had normal platelets (225K) for 7 years now. My full story can be found at http://www.itppeople.com/christina.htm
Please contact me with any questions at Christina914@hotmail.com. Put "ITP" in the subject line. Good luck & many platelets to you all!
|Post 169 - By: ramon gomez - Post Date: 5/29/2009|
|my dougter got the ttp is now 11 days in the hospital with plasna exchange it was bery good the at first but now is not working they give chemotery once is any other trreatment for platelets disorders
|Post 170 - By: tiffany hawkins - Post Date: 5/27/2009|
|my 17yr old niece passed away aug. 08 from complications w/ ttp. we didn't know until after she passed. the doctors just kept saying she had ITP and would be fine. we still don't know if it was inherited or drug-induced or HUS?? if anyone would like to talk more, i would luv to hear your stories. i am raising money for awareness and research(karley breaux ttp foundation). thanks. luv the site. very helpful! email@example.com
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