We have created this Guestbook to allow our website visitors to ask questions and express their opinions. These comments are a valuable source of information about platelet disorders. We may respond to some of the inquiries when it is appropriate, but we will not respond to most questions or comments. The Guestbook cannot be a source for medical advice; patients must get their medical advice from their doctor.
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|Post 166 - By: Christina - Post Date: 6/17/2009|
|Dear Dr. George & Team and fellow readers,
PLEASE look further into the ITP/H-pylori connection. I had a terrible case of ITP a few years ago (lowest was count of 1,000 platelets), tested positive for H-pylori, took the antibotics with IVIG and my counts went up AND STAYED UP. I was stuck in the hospital for 2 months -- which seemed like years. I have had normal platelets (225K) for 7 years now. My full story can be found at http://www.itppeople.com/christina.htm
Please contact me with any questions at Christina914@hotmail.com. Put "ITP" in the subject line. Good luck & many platelets to you all!
|Post 167 - By: ramon gomez - Post Date: 5/29/2009|
|my dougter got the ttp is now 11 days in the hospital with plasna exchange it was bery good the at first but now is not working they give chemotery once is any other trreatment for platelets disorders
|Post 168 - By: tiffany hawkins - Post Date: 5/27/2009|
|my 17yr old niece passed away aug. 08 from complications w/ ttp. we didn't know until after she passed. the doctors just kept saying she had ITP and would be fine. we still don't know if it was inherited or drug-induced or HUS?? if anyone would like to talk more, i would luv to hear your stories. i am raising money for awareness and research(karley breaux ttp foundation). thanks. luv the site. very helpful! email@example.com
|Post 169 - By: Michele Heslop - Post Date: 5/20/2009|
|I live in atlanta ga, and my nine year old son was born with cogential thrombocytopenia.His platelets stay between 25 and 30 thousand. Do you have any info on Cogential Thrombocytopenia?
|Post 170 - By: Joanna Cole - Post Date: 5/13/2009|
|Diagnosed with ITP 2/4/2009. Had 3 rounds of Dexamethazone, ivIG. Most recently had 4 weekly infusions of Rituxamab. Exhausted but appear to be in remission.
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