We have created this Guestbook to allow our website visitors to ask questions and express their opinions. These comments are a valuable source of information about platelet disorders. We may respond to some of the inquiries when it is appropriate, but we will not respond to most questions or comments. The Guestbook cannot be a source for medical advice; patients must get their medical advice from their doctor.
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|Post 171 - By: Sheila Hill - Post Date: 8/9/2009|
|Dr. George's name was given to me by Dr. Peter Levine who diagnosed me with qualitative platelet disorder. I would like to pursue tests to receive a more definitive diagnosis for my healthcare providers if someone at your facility is working on this at this time.
|Post 172 - By: MVH - Post Date: 7/27/2009|
|35 y o son just dx in memphis tn (he is pilot away from home) initial dx was pancreatitis.
is there an expert in this area?
|Post 173 - By: Pamela Beck - Post Date: 7/12/2009|
|I had TTP HUS in 1999, but was treated in Tulsa, so am not eligible for Dr. George's study group. However, I am concerned about problems with memory and extremely low energy since my recovery. I am interested in any medications or treatments for these symptoms that other patients have found successful. Any responses would be greatly appreciated
|Post 174 - By: sicara wolverton - Post Date: 7/2/2009|
|my son was first diagnosed with itp, now they diagnosed him with THROMBOCYTOPENIA, if any one has this please feel free to email me with some information concerning this matter. im not understanding exactly what this is and whys its happening.
|Post 175 - By: Kem Britton - Post Date: 6/25/2009|
|I am very Thankful to be doing alright Today, I am very Grateful to
Dr. George, and Dr.Shohan
For noticing My Symtoms, TTP, I have been Quite apprehensive since the diagnosis, My platelet count started on May 29,09 @4000 m.l.,
and after 5 platelet transfusions, and 5 blood transfusion. My count did not increase much.
I was transfered to Okc on the 3rd of June,on the 4th I was Blessed to have been givin the oppurtunity to meet with Dr. George He explained to Me in lamans terms about was what was going on, It felt great to know their is help.
My treatment required another platelet transfusion, to come from 17 to 30 m.l. in order to have a high enough platelet count to accept the plasma transfusions.
I was released from the Hospital on June the 8th.
I am very Blessed by the treatments thus far.
My platelet count peaked to 327 on 3-20m.g. prednisone a day, I have now been decreased to 1-20m.g. a day, and My platelet count to date is 242 on June 25,09
I must say I still feel quite nervous about the outcome, I am very Hopeful the Platelet count will continue to hold above 200 after the prednosone has been quit.
My Prayers go out to All People suffering with this disease. Hopes for high platelet counts to All
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