We have created this Guestbook to allow our website visitors to ask questions and express their opinions. These comments are a valuable source of information about platelet disorders. We may respond to some of the inquiries when it is appropriate, but we will not respond to most questions or comments. The Guestbook cannot be a source for medical advice; patients must get their medical advice from their doctor.
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|Post 171 - By: JTH - Post Date: 8/27/2009|
|Dear Dr George and Team
I'm a 44 year old female and September 2005 I was diagnosed with TTP, with platelet count of 8 and hemogl dropped to 50. December of 2006 I was back in the ER that confirmed a relapsed. Today, I'm still on 10 mg prednisone and 100 mg of Imuran, soon the prednisone will be reduced and hopefully Imuran will do it's job. I also have a mixed connective tissue disease, and hypothyroid.
I've started a fundraiser to raise funds and awareness for TTP, I would like to expand and start a support group as well start a national organization is there anyone I can speak to that can be role model for starting a ttp support group.
Hope to hear from you
|Post 172 - By: email@example.com - Post Date: 8/24/2009|
|I have ITP with a platelet count of 50 and white count of 3.6. My husband's platelet count is 110. We recently had an air quality test done in our home and we have high levels of aspergillus fumigatus. Could exposure to this be causing a platelet count problem?
|Post 173 - By: Kem Britton - Post Date: 8/9/2009|
|"MVH" Hello Iam not an expert although I was dx with pancreatitis As well I went into the ER with pain just below My ribs, I was also notified that My platelet count was @ a dangerous level of only 4000 which the norm is between 340,000 to 450,000. The Dr. reaction was "I cant believe Your not bleeding all over My ER". My Quetion to You is was Your Son dx with low platelet count (TTP) as well? Would really appreciate Your response. You can read more about My situation in the Guestbook. I really wish Your Son Well.Please E-mail Me firstname.lastname@example.org
|Post 174 - By: Sheila Hill - Post Date: 8/9/2009|
|Dr. George's name was given to me by Dr. Peter Levine who diagnosed me with qualitative platelet disorder. I would like to pursue tests to receive a more definitive diagnosis for my healthcare providers if someone at your facility is working on this at this time.
|Post 175 - By: MVH - Post Date: 7/27/2009|
|35 y o son just dx in memphis tn (he is pilot away from home) initial dx was pancreatitis.
is there an expert in this area?
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