We have created this Guestbook to allow our website visitors to ask questions and express their opinions. These comments are a valuable source of information about platelet disorders. We may respond to some of the inquiries when it is appropriate, but we will not respond to most questions or comments. The Guestbook cannot be a source for medical advice; patients must get their medical advice from their doctor.
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|Post 181 - By: tiffany hawkins - Post Date: 5/27/2009|
|my 17yr old niece passed away aug. 08 from complications w/ ttp. we didn't know until after she passed. the doctors just kept saying she had ITP and would be fine. we still don't know if it was inherited or drug-induced or HUS?? if anyone would like to talk more, i would luv to hear your stories. i am raising money for awareness and research(karley breaux ttp foundation). thanks. luv the site. very helpful! firstname.lastname@example.org
|Post 182 - By: Michele Heslop - Post Date: 5/20/2009|
|I live in atlanta ga, and my nine year old son was born with cogential thrombocytopenia.His platelets stay between 25 and 30 thousand. Do you have any info on Cogential Thrombocytopenia?
|Post 183 - By: Joanna Cole - Post Date: 5/13/2009|
|Diagnosed with ITP 2/4/2009. Had 3 rounds of Dexamethazone, ivIG. Most recently had 4 weekly infusions of Rituxamab. Exhausted but appear to be in remission.
|Post 184 - By: Jim - Post Date: 5/6/2009|
|I am a 44 y/o man that was diagnosed with TTP 2 yrs ago. So far, my blood levels have been great. I did have 100 plasma exchanges and numerous blood transfusions during my 4 month stay in the hospital. I exhibited all the symptoms and went through all the tests and procedures (splenectomy, chemo drugs, etc). I am thankful for my doctor and the hospital for knowing right away what I had and taking great care of me....I would like to help all that have any questions that I can answer or just to hear others with their stories....
|Post 185 - By: pikapal - Post Date: 5/1/2009|
|thanks for this guide. It really helped me in my school project. ^.^
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