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Recent Entries

Post 186 - By: tiffany hawkins - Post Date: 5/27/2009
my 17yr old niece passed away aug. 08 from complications w/ ttp. we didn't know until after she passed. the doctors just kept saying she had ITP and would be fine. we still don't know if it was inherited or drug-induced or HUS?? if anyone would like to talk more, i would luv to hear your stories. i am raising money for awareness and research(karley breaux ttp foundation). thanks. luv the site. very helpful!
Post 187 - By: Michele Heslop - Post Date: 5/20/2009
I live in atlanta ga, and my nine year old son was born with cogential thrombocytopenia.His platelets stay between 25 and 30 thousand. Do you have any info on Cogential Thrombocytopenia?
Post 188 - By: Joanna Cole - Post Date: 5/13/2009
Diagnosed with ITP 2/4/2009. Had 3 rounds of Dexamethazone, ivIG. Most recently had 4 weekly infusions of Rituxamab. Exhausted but appear to be in remission. Burlington, VT
Post 189 - By: Jim - Post Date: 5/6/2009
I am a 44 y/o man that was diagnosed with TTP 2 yrs ago. So far, my blood levels have been great. I did have 100 plasma exchanges and numerous blood transfusions during my 4 month stay in the hospital. I exhibited all the symptoms and went through all the tests and procedures (splenectomy, chemo drugs, etc). I am thankful for my doctor and the hospital for knowing right away what I had and taking great care of me....I would like to help all that have any questions that I can answer or just to hear others with their stories....
Post 190 - By: pikapal - Post Date: 5/1/2009
thanks for this guide. It really helped me in my school project. ^.^

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