We have created this Guestbook to allow our website visitors to ask questions and express their opinions. These comments are a valuable source of information about platelet disorders. We may respond to some of the inquiries when it is appropriate, but we will not respond to most questions or comments. The Guestbook cannot be a source for medical advice; patients must get their medical advice from their doctor.
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|Post 21 - By: Cindy Mansfield - Post Date: 8/26/2012|
|My 27 year old daughter was diagnosed with TTP the beginning of June. She experienced many of the same things as the story on Ralph. She has gone through the 4 week of Retuxin (chemo) therapy. She was having Plasma treatment 3 times a week but due to low LDH levels has been having plasma treatments 5 times a week. Dr. Ebstein at Fort Wayne Regional Medical Center was her hematologist is now referring her to
Dr. Mehta near Carmel, IN
I have found this website very helpful and
only wish were lived closer to Oaklahoma. Concerned Mom from Goshen, Indiana
|Post 22 - By: Sandy O - Post Date: 8/8/2012|
|Does TTP-HUS come on suddenly with intense dry heaves and back pain - had plasma exchange for 7 days and kidney dialysis for four days every other day. I am home now but still no definitive answer to what caused it. Can the anti-biotic Rimfampin cause HUS? Is it possible I will never find out? This happened on 7/5/2012 and I am now recovering at home. Still have a little lower than normal red blood cells - is this normal
|Post 23 - By: Eric Farley - Post Date: 7/23/2012|
|I was diagnosed with TTP a few months ago. Spent 2 weeks in the hospital getting plasmaphoresis treatments. I have been out since May 8th and haven't had any more problems so far. I'm VERY thankful for that. God Blees the doctors and hopsital staff that helped me through it. Also, bless all of you that are going through it now. My thought and prayers are with you for a speedy recovery.
|Post 24 - By: Vivian Bissett - Post Date: 6/22/2012|
|I am newly diagnosed. I am wondering if it is possible. Could my TTP be related to Maternal Granmothers' blood disease? She had Hemachromatosis, My Maternal Uncle- Profuria (spelling?) one of my maternal cousins 25 yrs ago-ITP. Is it possible all these are related somehow?
I did not have any diarrhea that MD. states precedes my condition.
|Post 25 - By: Vivian Bissett - Post Date: 6/22/2012|
|I was diagnosed with TTP in March 2012. I went through packed cell transfusions followed by 16 days of platlets phersis. I am interested in some type of support group interaction with other patients who have survived and for me to find ansers to questions. This is the only place I have been able to find that might provide that place for me. However I live in South Carolina and I am unable to travel to group meetings at this time.
Any information you may provide would be greatly appreciated!!!
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