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Recent Entries

Post 26 - By: kathy michael - Post Date: 9/3/2012
my grandaughter was diagnosed with ITP sixteen months ago at the age of 7 .She has been on Ivig, steroids and 4 rounds of Rituxin. I've read about health benefits of honey. Could it benefit or hurt her platelets Also,she drinks cow's milk and eats(sometimes ) hummus with Tahini. Should she stop eating both foods? I'd appreciate any advice you could give me.
Post 27 - By: Cindy Mansfield - Post Date: 8/26/2012
My 27 year old daughter was diagnosed with TTP the beginning of June. She experienced many of the same things as the story on Ralph. She has gone through the 4 week of Retuxin (chemo) therapy. She was having Plasma treatment 3 times a week but due to low LDH levels has been having plasma treatments 5 times a week. Dr. Ebstein at Fort Wayne Regional Medical Center was her hematologist is now referring her to Dr. Mehta near Carmel, IN I have found this website very helpful and only wish were lived closer to Oaklahoma. Concerned Mom from Goshen, Indiana
Post 28 - By: Sandy O - Post Date: 8/8/2012
Does TTP-HUS come on suddenly with intense dry heaves and back pain - had plasma exchange for 7 days and kidney dialysis for four days every other day. I am home now but still no definitive answer to what caused it. Can the anti-biotic Rimfampin cause HUS? Is it possible I will never find out? This happened on 7/5/2012 and I am now recovering at home. Still have a little lower than normal red blood cells - is this normal
Post 29 - By: Eric Farley - Post Date: 7/23/2012
I was diagnosed with TTP a few months ago. Spent 2 weeks in the hospital getting plasmaphoresis treatments. I have been out since May 8th and haven't had any more problems so far. I'm VERY thankful for that. God Blees the doctors and hopsital staff that helped me through it. Also, bless all of you that are going through it now. My thought and prayers are with you for a speedy recovery.
Post 30 - By: Vivian Bissett - Post Date: 6/22/2012
I was diagnosed with TTP in March 2012. I went through packed cell transfusions followed by 16 days of platlets phersis. I am interested in some type of support group interaction with other patients who have survived and for me to find ansers to questions. This is the only place I have been able to find that might provide that place for me. However I live in South Carolina and I am unable to travel to group meetings at this time. Any information you may provide would be greatly appreciated!!! Thank you!

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