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We have created this Guestbook to allow our website visitors to ask questions and express their opinions. These comments are a valuable source of information about platelet disorders. We may respond to some of the inquiries when it is appropriate, but we will not respond to most questions or comments. The Guestbook cannot be a source for medical advice; patients must get their medical advice from their doctor.




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Recent Entries

Post 26 - By: Viral Kapadia - Post Date: 5/26/2012
My cousin was diagnosed for TTP when she was 5 month pregnent. She passed away on 14th May, 2012 after 40 days of treatment. She had undergone more than 25 treatment of Plasmapheresis and 2* 500mg of Rituximab. I have a lot of details and reports to share in case it help some doctors in their study. Pls contact me on my emailid if you need to know more.
Post 27 - By: M. Wright - Post Date: 4/21/2012
I have had low platelets for almost 30 years. I started out with 96,000 and have gradually dropped over the years. I gradually developed a mild macrocytic anemia. I self diagnosed myself as ITP for years but when the anemia became more obvious I worried about MDS. I finally got my first bone marrow when platelet count dropped to 27k. I was diagnosed with low risk MDS. My question is : Have you seen previous cases of ITP evolve into MDS? How often? Might the MDS have evolved from chronic immune stimulation and mutation of rapidly dividing megakaryocytic stem cells? Might I be more or less likely to respond to NPlate or Promacta or vidaza?
Post 28 - By: Gianna Caruso - Post Date: 4/16/2012
Newly diagnosed...still in the hospital!
Post 29 - By: Angie S - Post Date: 3/7/2012
Can anyone tell me what the pros and cons of getting pregnant are when you have TTP? Is it possible and if so, how risky is it?
Post 30 - By: tina benzing - Post Date: 3/7/2012
i have 2 childen who have been diagnosed with congenital TTP

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