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Recent Entries

Post 31 - By: Vivian Bissett - Post Date: 6/22/2012
I am newly diagnosed. I am wondering if it is possible. Could my TTP be related to Maternal Granmothers' blood disease? She had Hemachromatosis, My Maternal Uncle- Profuria (spelling?) one of my maternal cousins 25 yrs ago-ITP. Is it possible all these are related somehow? I did not have any diarrhea that MD. states precedes my condition. Brown
Post 32 - By: Marisa Francavilla - Post Date: 6/6/2012
I'm from Melbourne Australia. I have hap TTP from when I was 24 years old. It's now nearly ten years and I still live in fear of it as I have relapsed every year and three years ago I relapsed twice within months apart. What scares me most is that when I present myself at the Emergeny Department the doctors look at me as if I don't know what I am talking about.
Post 33 - By: Viral Kapadia - Post Date: 5/26/2012
My cousin was diagnosed for TTP when she was 5 month pregnent. She passed away on 14th May, 2012 after 40 days of treatment. She had undergone more than 25 treatment of Plasmapheresis and 2* 500mg of Rituximab. I have a lot of details and reports to share in case it help some doctors in their study. Pls contact me on my emailid if you need to know more.
Post 34 - By: M. Wright - Post Date: 4/21/2012
I have had low platelets for almost 30 years. I started out with 96,000 and have gradually dropped over the years. I gradually developed a mild macrocytic anemia. I self diagnosed myself as ITP for years but when the anemia became more obvious I worried about MDS. I finally got my first bone marrow when platelet count dropped to 27k. I was diagnosed with low risk MDS. My question is : Have you seen previous cases of ITP evolve into MDS? How often? Might the MDS have evolved from chronic immune stimulation and mutation of rapidly dividing megakaryocytic stem cells? Might I be more or less likely to respond to NPlate or Promacta or vidaza?
Post 35 - By: Gianna Caruso - Post Date: 4/16/2012
Newly diagnosed...still in the hospital!

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