We have created this Guestbook to allow our website visitors to ask questions and express their opinions. These comments are a valuable source of information about platelet disorders. We may respond to some of the inquiries when it is appropriate, but we will not respond to most questions or comments. The Guestbook cannot be a source for medical advice; patients must get their medical advice from their doctor.
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|Post 31 - By: Henry Cavanagh - Post Date: 10/14/2011|
|I am a platelet donor. Seems your platelet page has a slight error. It states that both red cells and platelets are the most numerous in the blood. Looks like red from the numbers you give. Which is it...? Perhaps you should read that page and see if I perhaps misunderstood...thanks for the info
|Post 32 - By: Erica Brooks - Post Date: 10/12/2011|
|This was very helpful for me. I was diagnosed in September 2010. My platelets dropped one year later,(October 2011). Just restared treatment. I am looking to read and understand more about my condition.
|Post 33 - By: Travis LaPrad - Post Date: 9/21/2011|
|I was diagnose 12 years ago with TTP and i have had 11 relapses.They have tried chemo plasma transfusion none have worked for any length of time and my dr doesnt know what to do next
|Post 34 - By: Debra Mitchell - Post Date: 9/21/2011|
|I have had a platelet count of 37,000 my Dr. called me today and told me my platelet count was up.....I feel like it's a miracle because I have not taken anything for my platelets....I am greatful for websites like these...They give me hope!
|Post 35 - By: Shanna Maness - Post Date: 9/9/2011|
|I am a 35 year old female who was always very healthy until I was diagnosed with TTP in July of 2009. I was 8 months pregnant and my placenta abrubted about 5:00 am at 9:30 am I had an emergency C section and by 3:30 in the after noon my kidneys a liver were both failing. I dont have much memory of the first 3 weeks. I know that I started dialysis that night around 9 pm. I had dialysis and Plasma Pherisis daily for several weeks. When my counts all returned somewhat normal I was released from the hospital. I take medication daily for extremely high bp (this started with TTP).I also take meds for problems with my stomach. I have had gullbladder removed, Nisan wrap(sp) (to stop constint vomitting) ERCP with stint placement in the pancreatic duct and MRCP now the stint has been removed and I still show signs that my stomach is still not digestung properly(This all started with TTP also).I have had a hard time with my memory since then, wear down and get tierd very easy and have joint pain that gets very severe. The last few weeks my memory loss is getting much worse, somedays I cant remember in the afternoon what has gone on in the morning. I have to write my days down to be able to recall what I have done. I am having a very hard time with speech. I will think I am saying something and my husband will look at me like Im crazy b/c my words were jumbled. I even write our type the same way. This is getting much worse and very fast.I am having trouble with my vision, again each symptom started with the TTP and has only gotten worse.I dont have a Dr. that follows my TTP. I actually moved about 1 1/2 yrs ago and have just been sent from one specialist to another for different surgeries or procedures ( for GI promlems). I have even been sent out of state to see a certain dr. for GI procedures. My questions are is this normal at all after TTP. I have had blood work done that always shows
anemia sometimes abnormal liver enzymes ect. What kind of Dr. do I need to look for? Or is this just normal? I have tried to keep as much of this to myself as I could so that I dont worry my family. Things are just to the point that I need some kind of answers. Any Information would be very appreciated.
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