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|Post 36 - By: Kathy Munger - Post Date: 6/20/2011|
|My daughter is now 23 years old, and has had a low platelet count since birth. She started out in her early years with 20,30,even as high as 40 thousand platelets, and now as she has gotten older her platelets seem to stay very low, between 5 - 10 thousand.
She's had bone marrow aspirations to determine if her marrow was producing platelets and they are. Treatments they've tried are platelet transfusion,prednisone,chemo therapy for 4 weeks, the transfusion with 10 different donors would incease platelets by 20000, bringing them to a total of 30000 but after 8hrs, they'd drop back to the usual 10000. Prednisone same thing, and the chemo therapy didn't work. She's working and living on her own now, but I have noticed that everytime I call her she's sleeping, I'm concerned because she is at that child bearing age and I'm a worrid mom. She even had the ivig treatment you refer to and on my way home , 30 minutes after the treatment she complained of a vise sqeezing her head, the worst headache she had ever experienced. She is a very rare case because I've never met or spoken to anyone who was born with this and would still have it at age 23, unheard of and doctors are puzzled. She's seen several different specialists, and for lack of a better term they call it ITP, but it doesn't follow all of the signs of ITP.
She had a great pediatrition that noticed petechia on her back before she was discharged from the hospital. Perhaps others have had it since birth but no one picked up on it. I had a c-section with her and so the petechia was not related to trauma from birth.
Any thoughts on this. I'm sure she would love to have children someday but without a way to increase and keep the count up to a satisfactory level I don't see how it's possible without risking her life. If you can think of anything she hasn't done or know of someone who has had it since birth and is now cured please email me with this info. Thank you for listening. Concerned Mom, Tampa,Fl
|Post 37 - By: Greg Bohm - Post Date: 6/16/2011|
|I am writing an anatomy and physiology lab exercise on blood clotting for students on allied health tracks. May I have permission to use a platelet image to illustrate the commentary. If yes, please let me know how you want acknowledgement.
|Post 38 - By: Bill Karge - Post Date: 6/9/2011|
|I'm a 77 yr old male diagnosed with ITP and low Iron in June 2010. Platlet count was down to 32,00. Have had treatments with prednosne, winro, and Rituxin. All have resulted in only temporary improvement. Now 4 weeks after and counts are starting to decline again-- looks like a spleenectomy is next.
|Post 39 - By: Shanna McKinney - Post Date: 5/27/2011|
|i was told about this web site two yeas ago. i was diagonse with ttp/itp and recovered from t he intital flare-up and han't had one since then.
|Post 40 - By: Amy Granados - Post Date: 5/20/2011|
|I had TTP in Aug. 2010, as a result and during my plasma exchange treatments I had 2 Grand Mal seizures and broke both of my shoulders as a result. after a month in the hospital from the TTP I did several months of rehab, I take seizure meds and I was diagnosed with pancriatic tumor that I had a major whipple surgery to remove in late Feb. 2011. I am obviously still recovering from that surgery, but I notice how tired I have stayed before and after this surgery along with my major memory issue. I am just wondering if anyone has been suffering from the same after effects as me with chronic fatigue and memory loss and does any of this ever get better?? I wonder what type of doctor I need to be seeing for any of these things becuase my hemotologist just checks my blood counts at this point.
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