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We have created this Guestbook to allow our website visitors to ask questions and express their opinions. These comments are a valuable source of information about platelet disorders. We may respond to some of the inquiries when it is appropriate, but we will not respond to most questions or comments. The Guestbook cannot be a source for medical advice; patients must get their medical advice from their doctor.




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Recent Entries

Post 6 - By: Terry Elmore - Post Date: 11/30/2012
I got TTP on June 17, 2012. I was in the hospital for a month. I am on 5 mg of prednisone every other day. Will taper off in two weeks. Was wondering how long do most TTP patients stay on steroids?
Post 7 - By: jane - Post Date: 11/7/2012
i have TTP, was in hospital for months.Out now, platelettes r normal but still have symptoms.Dr. says impossible
Post 8 - By: Gene street - Post Date: 10/18/2012
Have low platelets and low WBC.age 72. Great health other than these two items. Not on any medicine yet. Want to try extended" do not eat" certain item diet
Post 9 - By: Pat - Post Date: 9/20/2012
Now in week six of diagnosing and treatment of our first son, Curt, who will be 3 in December. Levels have gone from 2k at first diagnoses up to 31k 12 hours after IVIG to 8k after 10 days (with Marrow Biopsy)to 21k after 2 days of Pred to 15k after 10 days of Pred to 48k after 14 days of Pred to 17k after 21 days of ratcheting down Pred. We now are at the beggining of a week of no steriods to see what outcome will be. My wife and i are tired emotionally, but luckily the boy exhibits outward signs that let us know where his level is (I actually guesses this morning's reading right due to apperance of bruising.) Thank you for this site to build up my strength. I hope that any other new parents who are here might take solace in the fact that others go through it and feel the same spectrum of emotions......and thats its natural to feel them all. All I want in the world is for my boy immune system to hit the reset button and I will never complain about life again.
Post 10 - By: ely choufani - Post Date: 9/10/2012
i have a 24 yo woman with chronic ITP and chronically low counts (<20k), refractory to steroids, now 6 weeks pregnant; what would be the best tx options for her? thanks

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