We have created this Guestbook to allow our website visitors to ask questions and express their opinions. These comments are a valuable source of information about platelet disorders. We may respond to some of the inquiries when it is appropriate, but we will not respond to most questions or comments. The Guestbook cannot be a source for medical advice; patients must get their medical advice from their doctor.
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|Post 6 - By: Jimmy Morris Jr - Post Date: 6/10/2014|
|I have been battling with TTP since 2004 and lately I have had a platelet count of 5,000 and needing direction
|Post 7 - By: Barney - Post Date: 6/3/2014|
|Thank you, thank you, thank you. I was just diagnosed at 58 with ITP as am very scared. This site has been a boon. My Hematologist told me about it and it has helped educate me greatly, things never happen in a vacuum, all this happened just as I was planning to fly back to my take care of my Mum and Dad due to her diagnosis of Alzheimer's. What a dilemma, something I hope my Hematologist can help me with. Thanks again for this thoughtful site. And yes, the side effects of Steroids are simply awful! Kindest Regards, Barney
|Post 8 - By: Ashlee - Post Date: 4/29/2014|
|Hello, I wish I had read this story years ago I have a rear form of itp too that my fathers family and my brothers have. I have a constant count of 20 and my brothers that are twins have a count that stays around 10 we experience a lot of the same doctors freaking out and wanting to do treatments my mother was always against it even when I had a c section my mother donated her own platelets for me and everything went smoothly even though the doctors tried there best to put the fear of god in me!!! Its nice knowing your not alone with this! Thank you for your story
|Post 9 - By: Cheryl turcotte - Post Date: 4/13/2014|
This is my third ttp episode I think I need as much information as I can get
|Post 10 - By: Sewa Mobil Murah Di Bali - Post Date: 4/3/2014|
|I,ve had TTP about 6 times now an it,s very worrying.I,ve just been told my ADAMTS13 level as dropped to under 5% so i feel like my body is a ticking time bomb.
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