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|Post 6 - By: Shannon - Post Date: 5/2/2013|
|I was diagnosed with ITP and Anemia a few days ago with a platelet count of 4. I had a severe case of Henoch Schonlein Purpura for 11 years as a child into my early 20's. I'm wondering if the ITP could possibly be related? I'm in OKC and may be interested in the clinical study.
|Post 7 - By: Terry Elmore - Post Date: 11/30/2012|
|I got TTP on June 17, 2012. I was in the hospital for a month. I am on 5 mg of prednisone every other day. Will taper off in two weeks. Was wondering how long do most TTP patients stay on steroids?
|Post 8 - By: jane - Post Date: 11/7/2012|
|i have TTP, was in hospital for months.Out now, platelettes r normal but still have symptoms.Dr. says impossible
|Post 9 - By: Gene street - Post Date: 10/18/2012|
|Have low platelets and low WBC.age 72. Great health other than these two items. Not on any medicine yet. Want to try extended" do not eat" certain item diet
|Post 10 - By: Pat - Post Date: 9/20/2012|
|Now in week six of diagnosing and treatment of our first son, Curt, who will be 3 in December.
Levels have gone from 2k at first diagnoses up to 31k 12 hours after IVIG to 8k after 10 days (with Marrow Biopsy)to 21k after 2 days of Pred to 15k after 10 days of Pred to 48k after 14 days of Pred to 17k after 21 days of ratcheting down Pred. We now are at the beggining of a week of no steriods to see what outcome will be.
My wife and i are tired emotionally, but luckily the boy exhibits outward signs that let us know where his level is (I actually guesses this morning's reading right due to apperance of bruising.)
Thank you for this site to build up my strength. I hope that any other new parents who are here might take solace in the fact that others go through it and feel the same spectrum of emotions......and thats its natural to feel them all. All I want in the world is for my boy immune system to hit the reset button and I will never complain about life again.
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