We have created this Guestbook to allow our website visitors to ask questions and express their opinions. These comments are a valuable source of information about platelet disorders. We may respond to some of the inquiries when it is appropriate, but we will not respond to most questions or comments. The Guestbook cannot be a source for medical advice; patients must get their medical advice from their doctor.
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|Post 51 - By: Shanna McKinney - Post Date: 5/27/2011|
|i was told about this web site two yeas ago. i was diagonse with ttp/itp and recovered from t he intital flare-up and han't had one since then.
|Post 52 - By: Amy Granados - Post Date: 5/20/2011|
|I had TTP in Aug. 2010, as a result and during my plasma exchange treatments I had 2 Grand Mal seizures and broke both of my shoulders as a result. after a month in the hospital from the TTP I did several months of rehab, I take seizure meds and I was diagnosed with pancriatic tumor that I had a major whipple surgery to remove in late Feb. 2011. I am obviously still recovering from that surgery, but I notice how tired I have stayed before and after this surgery along with my major memory issue. I am just wondering if anyone has been suffering from the same after effects as me with chronic fatigue and memory loss and does any of this ever get better?? I wonder what type of doctor I need to be seeing for any of these things becuase my hemotologist just checks my blood counts at this point.
|Post 53 - By: donna peck - Post Date: 5/8/2011|
|I have my 2nd round of ttp
|Post 54 - By: Elizabeth Thomas - Post Date: 5/3/2011|
|I am told I have to have a hip replacement. I have a problem with ITP and so am now on a low dose of prednisone (5 mg every other day). I want to take herbal supplements to help the cartilege in my hip that is apparently somewhat destroyed, but don't want to take something that will lower my platelet count (this week at 94k). Can I take glucosamine or tumeric or tart cherry or flaxseed oil or omega-3 without hurting my count? How can I find out it other supplements will help or not? Thank you for any help!
|Post 55 - By: suntheone - Post Date: 4/22/2011|
|My brother has been diagnosed with ITP during first week of april 2011. He is given prednisone 80mg/day, his weight is 85kg age is 39 yrs after 3 consecutive doses of some steroids. he is responding well. I pray to god that he give strength to him and everybody fighting with the disease.
And I am particularly indebted to ASH for their knowledge, research and sharing the information about ITP. I am hoping that after completion of course of prednisone he will be alright..
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