We have created this Guestbook to allow our website visitors to ask questions and express their opinions. These comments are a valuable source of information about platelet disorders. We may respond to some of the inquiries when it is appropriate, but we will not respond to most questions or comments. The Guestbook cannot be a source for medical advice; patients must get their medical advice from their doctor.
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|Post 61 - By: Christine Richmond - Post Date: 1/18/2011|
|Found this article very interesting and usefull. I have had TTP 4 times now and only after I have had a course of Rituxamab have I gone into remission. I am from Cambridge U.K.
|Post 62 - By: Susan Phillips - Post Date: 1/12/2011|
|I,ve had TTP about 6 times now an it,s very worrying.I,ve just been told my ADAMTS13 level as dropped to under 5% so i feel like my body is a ticking time bomb.
|Post 63 - By: Jane Martin - Post Date: 1/11/2011|
|ITP..runs in my family..I am 71 years old have been cronic for years..about 30 thousand, do not treat and live a normal life inspite of a heart attack and copd.
23 year old grandaughter had two acute episodes, platelets dropped to 1 thousand...at 7 & 13, was hospitalized both times, platlets returned to normal after treatment.
Recently discovered grandmother's infant baby died in 1909 of what appears to be ITP.
|Post 64 - By: Lucinda Ott - Post Date: 1/2/2011|
|Please help me in getting the best treatment possible It has been a year since my diagnosis and I am still having a lot of problems and I need to know if I will get back my old self and how to handle this disease TTP it has just been devastating to say the least I want to know what treatment options I have
Please help me
|Post 65 - By: Lucinda Ott - Post Date: 1/2/2011|
|I was diagnosed 12-09 with a very rare blood disease TTP. I am trying to find the top rated Hematologists treating this disease. Please help me with this matter, since it is a rare disease I am looking for the best treatment facility and hematologist
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