We have created this Guestbook to allow our website visitors to ask questions and express their opinions. These comments are a valuable source of information about platelet disorders. We may respond to some of the inquiries when it is appropriate, but we will not respond to most questions or comments. The Guestbook cannot be a source for medical advice; patients must get their medical advice from their doctor.
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|Post 66 - By: Andrea Willy - Post Date: 3/17/2011|
|My AdamTS13 has never been above 7. I was diagnosed with TTP May 10, 2010 and relapsed March 3, 2011, during that time my AdamTS13 has never risen above 7. I have read that there are abnormally low levels but would like to know what that actually means. Does a treatment like the Retuximab help with this? I was trying to conceive when I relapsed and am scared how this would impact my body, and future baby. All information is appreciated!
|Post 67 - By: Andrea Willy - Post Date: 3/17/2011|
|What are the benefits of IVIG and TTP? Does IVIG have longer remission effects? Can IVIG be used during pregnancy? My ADAMTS13 has been <5 since I was diagnosed with TTP and only rose to 7 since I was in remission would IVIG be something that could help me? My TTP is active again and have been receiving plasma exchange and am looking for more options.
|Post 68 - By: patrick - Post Date: 3/13/2011|
|Thank you for the information and patient perspective on TTP. My wife was diagnosed three weeks ago. To compound the condition, she has had MS for the last 24 years. While undergoing treatment she has had at least one TIA event,had her body reject plasmapheresis, and contracted pneumonia. She has been a challenge to the team at Presbyterian/St. Lukes here in Denver. The knowledge shared is invaluable and I believe I know what to expect in the short and long term. Thank you again.
|Post 69 - By: Jaimee James - Post Date: 3/12/2011|
|My 5 year old daughter was recently in the hospital for 1 week with ITP. The week prior to her being admitted she drank "sanitizer" that was mistakingly put in a milk carton. Although at this time I don't have a list of what all was in this sanitizer, I'm wondering if you have had any cases like this. She had a small cough for a few days 3-4 weeks before this occurred but no illness or virus. Thank you for your help!
|Post 70 - By: Andrea Willy - Post Date: 3/8/2011|
|I have unexplained infertility, i took medication to become pregnant, last year had two chemical pregnancies and was diagnosed with TTP immediately after. This year we started fertility treatments again and am back in the hospital with TTP. Is there anything that i can do or take? I am in the hospital now waiting to do an hcg quant tomorrow to find out if the meds worked and i was able to conceive. I am 31 and in pretty good health, other than the TTP. Any information is appreciated!
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