We have created this Guestbook to allow our website visitors to ask questions and express their opinions. These comments are a valuable source of information about platelet disorders. We may respond to some of the inquiries when it is appropriate, but we will not respond to most questions or comments. The Guestbook cannot be a source for medical advice; patients must get their medical advice from their doctor.
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|Post 86 - By: Elijah Smiley - Post Date: 11/20/2010|
|Very Good Information for parents. My 8 year daughter diagnosed w/ itp. IVIG, Anti D, Rituximab, Spleennectomy have not been effective. Considering doing nothing except what is necessary to address bleeding. Been given option of Romipiostim, Mercaptopurine, Dapson, or Mycophenolate. Trying to learn as much as possible about these drugs.
|Post 87 - By: Rita Martin - Post Date: 11/20/2010|
|As someone who has had ITP since 1998, I am interested in constantly learning about ITP. I am now on Promacta.
|Post 88 - By: tara motowski - Post Date: 11/8/2010|
|Please help...i am afrais my friend, Chris, is running out of time! He is a 38yr old male and father of 3 great kids. 14 months post bone marrow transplant following leukemia diagnoses in My 2009. Currently in ICU at Karmanos in Detroit. Diagnosed with TTP. Kidneys have failed and now bleeding in his lungs. Attempted bronch but ended up on vent for 3 days.Continuous pheresis and dialysis...please respond if you can help the doctors at Karmanos who say they have neve seen a case this severe before. The family and doctors are open to any suggestions. Still coughing up blood but attempting another bronch is too risky. Thank you and God Bless you on your reseach!!
|Post 89 - By: Barbara manson - Post Date: 10/31/2010|
|My husband has ttp and is in ICU because he dosent breathe properly. He was lucid after 4 dayz of plasma pheresis then stopped breathing. Why?? And any extra treatment needed? He is gettin plasma exchange and doctors will meep hi
In ICU till tbey can wean him.
|Post 90 - By: Lisa Sponcel - Post Date: 10/24/2010|
|I live in Southern Indiana and had Ecoli 157, now have kidney failure and am on dialysis; and secondary TTP-HUS. I would like any information/connections to other doctors specializing in the TTP-HUS syndrome that I could possibly go to for follow-up. Thank you.
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