We have created this Guestbook to allow our website visitors to ask questions and express their opinions. These comments are a valuable source of information about platelet disorders. We may respond to some of the inquiries when it is appropriate, but we will not respond to most questions or comments. The Guestbook cannot be a source for medical advice; patients must get their medical advice from their doctor.
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|Post 86 - By: Nancy Lines - Post Date: 9/20/2010|
|My husband has had treatments with steriods, IVIG, platelet transfussions,& Nplate, and now Nplate is failing to respond. His platelets have dropped to 3 again. Is there any hope left?
|Post 87 - By: Tiffany - Post Date: 9/15/2010|
|This is a very informative website for people who have gone through this terrible disorder. I am a 33 year old mother of two, who was diagnosed with TTP in May 2010. My initial symptoms were headache, extreme fatigue, and just a general yuck feeling. These symptoms were present for a few weeks and then I woke up one morning with fever and felt terrible. I went to the doctor the following morning and she thought I probably had a bug, but did blood tests just to be on the safe side. She called me back immediately after getting my results back and sent me straight to the hospital. My platelet count was 8,000! Within 8 hours a wonderful hematologist diagnosed it as TTP and started plasma exchange on me that night. I spent a week in the hospital doing daily exchanges and another week doing exchanges as an outpatient, my blood counts went up and up and up until I finally reached normal levels. It's been several months now, and I am feeling much better, and my blood counts are still within normal ranges. I just want to send love and hope to other families going through this and to let you know that you can beat this!
|Post 88 - By: DEBORAH - Post Date: 8/27/2010|
|WHAT CAUSES UR PLATELETS TO GET LOW,AND WHEN THEY R LOW WHY DO U BREAK OUT WITH LIKE RED BLOOD CLOTS ALL OVER UR BODY.
|Post 89 - By: Susan - Post Date: 8/21/2010|
|Do you have any patients on kidney dialysis who had ITP?
My father has been om sreroids for ITP: no change, infusion of platelets: little change. His helotologist syas he has no info on patients with ITP and kidney failure..so he has no where else to go. N-Platets he said is not an option. Does anyone here ...doctor...researcher have any suggestions for treatment?
|Post 90 - By: pam - Post Date: 8/20/2010|
|I have a dear friend that has been diagnosed with Jak2 and in her case she her bone marrow result said it was a chromosone issue. She is 52 years and is taking medicine to try to get her platlets in order. Is there any thing else she can do medically or diet wise to try to get this under control? At first she a cancer pill and her plates came down but they have gone back up and keep going back and forth. Thank you
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