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Recent Entries

Post 91 - By: Rita Martin - Post Date: 11/20/2010
As someone who has had ITP since 1998, I am interested in constantly learning about ITP. I am now on Promacta.
Post 92 - By: tara motowski - Post Date: 11/8/2010
Please help...i am afrais my friend, Chris, is running out of time! He is a 38yr old male and father of 3 great kids. 14 months post bone marrow transplant following leukemia diagnoses in My 2009. Currently in ICU at Karmanos in Detroit. Diagnosed with TTP. Kidneys have failed and now bleeding in his lungs. Attempted bronch but ended up on vent for 3 days.Continuous pheresis and dialysis...please respond if you can help the doctors at Karmanos who say they have neve seen a case this severe before. The family and doctors are open to any suggestions. Still coughing up blood but attempting another bronch is too risky. Thank you and God Bless you on your reseach!!
Post 93 - By: Barbara manson - Post Date: 10/31/2010
My husband has ttp and is in ICU because he dosent breathe properly. He was lucid after 4 dayz of plasma pheresis then stopped breathing. Why?? And any extra treatment needed? He is gettin plasma exchange and doctors will meep hi In ICU till tbey can wean him.
Post 94 - By: Lisa Sponcel - Post Date: 10/24/2010
I live in Southern Indiana and had Ecoli 157, now have kidney failure and am on dialysis; and secondary TTP-HUS. I would like any information/connections to other doctors specializing in the TTP-HUS syndrome that I could possibly go to for follow-up. Thank you.
Post 95 - By: Katherine - Post Date: 10/24/2010
I am diagnosed withthrombocytopenia in pregnancy; platelets dropped from 140 to 124 by week 30, keep checkin every 2 weeks. Any advise? I do not want to take Prednisone. Thank you.

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