We have created this Guestbook to allow our website visitors to ask questions and express their opinions. These comments are a valuable source of information about platelet disorders. We may respond to some of the inquiries when it is appropriate, but we will not respond to most questions or comments. The Guestbook cannot be a source for medical advice; patients must get their medical advice from their doctor.
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|Post 91 - By: Nora G - Post Date: 11/20/2010|
|My daughter was dx w/ITP at age 15, not on any meds or sick at time. Platlet count 7000. Had 2 tx of IVIG with icrease to 125,000. Immediately dropped again and took 1 yr to reach 100,000 wo formal tx. She took 10,000mg of vitamin C everyday.I begged dr. to give Prednisone but wanted to see if she could recover on her own.Has been 100 or above for 2 yrs. When her count goes down she has headache,light headedness, epigastric pain. We see Dr. Sujit Sheth at Morgan Stanley Children's Hospital in Manhattan NY, Columbia Presbyterian, thank God we found him. Thought she may have Lupus,all tests negative for 5 yrs,and no symptoms of Lupus except ITP. Thanks for all you do.
|Post 92 - By: Elijah Smiley - Post Date: 11/20/2010|
|Very Good Information for parents. My 8 year daughter diagnosed w/ itp. IVIG, Anti D, Rituximab, Spleennectomy have not been effective. Considering doing nothing except what is necessary to address bleeding. Been given option of Romipiostim, Mercaptopurine, Dapson, or Mycophenolate. Trying to learn as much as possible about these drugs.
|Post 93 - By: Rita Martin - Post Date: 11/20/2010|
|As someone who has had ITP since 1998, I am interested in constantly learning about ITP. I am now on Promacta.
|Post 94 - By: tara motowski - Post Date: 11/8/2010|
|Please help...i am afrais my friend, Chris, is running out of time! He is a 38yr old male and father of 3 great kids. 14 months post bone marrow transplant following leukemia diagnoses in My 2009. Currently in ICU at Karmanos in Detroit. Diagnosed with TTP. Kidneys have failed and now bleeding in his lungs. Attempted bronch but ended up on vent for 3 days.Continuous pheresis and dialysis...please respond if you can help the doctors at Karmanos who say they have neve seen a case this severe before. The family and doctors are open to any suggestions. Still coughing up blood but attempting another bronch is too risky. Thank you and God Bless you on your reseach!!
|Post 95 - By: Barbara manson - Post Date: 10/31/2010|
|My husband has ttp and is in ICU because he dosent breathe properly. He was lucid after 4 dayz of plasma pheresis then stopped breathing. Why?? And any extra treatment needed? He is gettin plasma exchange and doctors will meep hi
In ICU till tbey can wean him.
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