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We have created this Guestbook to allow our website visitors to ask questions and express their opinions. These comments are a valuable source of information about platelet disorders. We may respond to some of the inquiries when it is appropriate, but we will not respond to most questions or comments. The Guestbook cannot be a source for medical advice; patients must get their medical advice from their doctor.




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Recent Entries

Post 96 - By: Doug - Post Date: 9/21/2010
Thank you for posting this information. My 19yr old daughter was diagnosed with ITP. Steroids and IVIG have not worked and looking at splenectomy now. Trying to avoid this and looking for as much information as possible. Thank you, Doug in Memphis, TN
Post 97 - By: Nancy Lines - Post Date: 9/20/2010
My husband has had treatments with steriods, IVIG, platelet transfussions,& Nplate, and now Nplate is failing to respond. His platelets have dropped to 3 again. Is there any hope left?
Post 98 - By: Tiffany - Post Date: 9/15/2010
This is a very informative website for people who have gone through this terrible disorder. I am a 33 year old mother of two, who was diagnosed with TTP in May 2010. My initial symptoms were headache, extreme fatigue, and just a general yuck feeling. These symptoms were present for a few weeks and then I woke up one morning with fever and felt terrible. I went to the doctor the following morning and she thought I probably had a bug, but did blood tests just to be on the safe side. She called me back immediately after getting my results back and sent me straight to the hospital. My platelet count was 8,000! Within 8 hours a wonderful hematologist diagnosed it as TTP and started plasma exchange on me that night. I spent a week in the hospital doing daily exchanges and another week doing exchanges as an outpatient, my blood counts went up and up and up until I finally reached normal levels. It's been several months now, and I am feeling much better, and my blood counts are still within normal ranges. I just want to send love and hope to other families going through this and to let you know that you can beat this!
Post 99 - By: DEBORAH - Post Date: 8/27/2010
WHAT CAUSES UR PLATELETS TO GET LOW,AND WHEN THEY R LOW WHY DO U BREAK OUT WITH LIKE RED BLOOD CLOTS ALL OVER UR BODY.
Post 100 - By: Susan - Post Date: 8/21/2010
Do you have any patients on kidney dialysis who had ITP? My father has been om sreroids for ITP: no change, infusion of platelets: little change. His helotologist syas he has no info on patients with ITP and kidney failure..so he has no where else to go. N-Platets he said is not an option. Does anyone here ...doctor...researcher have any suggestions for treatment? Thanks

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