New!Sarah Horton’s article, “The Value of Involving People with Disabilities in User Research,” discusses web accessibility and the importance of involving people with disabilities in the design and development of web and digital design in order to best meet their needs.
The Vanderbuilt Kenndedy Center and UT Boling Center, along with the Tenessee Department of Intellectual an Developmental Disabilities created an "IDD Healthcare E-Toolkit" for primary care providers of adults with intellectual and developmental disabilities.
People First (or Person First) Language is an inclusive way to talk about people with disabilities without using language that labels or is dehumanizing. AUCD (Association of University Centers on Disabilities) has a resource page on the Portrayal of People with Disabilities that includes examples of People First Language. For more information and resources visit https://www.aucd.org/template/page.cfm?id=605.
On April 1, 2014 Medicare funding for assistive technology speech devices will change. For more information on the new rental policy visit http://www.patientprovidercommunication.org/article_33.htm or http://www.asha.org/News/2013/CMS-Determines-Rent-to-Own-as-Only-Option-for-SGDs/2014 AUCD Disability Leadership Policy Fellow applications due March 31, 2014.
Watch the "What is a Good Life?" video from the 2014 Oklahoma Family Support Newtork Joining Forces Conference.
The Sibling Leadership Network (SLN) is seeking positive stories about experiences with providers. For more information visit the SLN website http://siblingleadership.org/2014/02/10/seeking-sibling-stories-about-experiences-with-providers/
Microsoft and GW Micro collaborated to create the “Global Window-Eyes initiative for users of Microsoft Office” a free Microsft Office screen reader for Windows PCs.
From your smart phone device, view our Mobile Version of the Guide to Community Services in Oklahoma.
“March 1, 2014 is Kids’ Day at the OU College of Dentistry. They will be providing free services to children between the ages of 5-12 years. The Kids’ Day clinic will open at 8:00 a.m. and will continue until the last patient is seen. They are open to any child across the state. If you know of a child who would benefit from dental care or need more information please contact by email at firstname.lastname@example.org or by telephone at (405) 271-4423. This is an excellent way to provide a dental service to children who fall between the cracks with dental insurance coverage or do not have a dentist in the local community.”
The National Center for Learning Disabilities website lists free and low-cost assistive technology apps that may help people with learning disabilities. The website offers a general list of apps, as well as lists specifically for people with reading difficulties, writing difficulties, and math difficulties. These lists are available by visiting www.ncld.org/students-disabilities.The Oklahoma Department of Rehabilitation Services has a program called iCanConnect, or the National Deaf-Blind Equipment Distribution Program, which helps make technology and equipment available to low-income Oklahomans with hearing loss or vision impairments. To find out about eligibility or learn more about the program visit the OKDRS website or call 918-551-4921.
Nemours Children’s Health System has developed four transition videos to help youth and young adults, as well as family members and caregivers, understand important issues related to transitioning to adulthood. The videos, available on YouTube, cover four main topics: legal/financial, residential, vocational, and medical self-management. All videos are available to view at www.nemours.org/about/mediaroom/press/dv/transition-videos.html. Each video is roughly 10-minutes long.
Winter has arrived in Oklahoma and weather preparedness is on many people’s minds. The American Red Cross has created information sheets on power outages and winter storms, both are available as PDF documents. Para Espanol oprima aqui power outage espanol y winter storms espanol.
(Fall 2013) Our colleagues at the American Public Health Association (APHA) hosted a briefing on U.S. efforts to ratify the disabilities treaty, the Convention of the Rights of Persons with Disabilities (CRPD). A new round of Senate hearings on the treaty will begin shortly. An earlier effort to bring the treaty before the Senate was blocked. The State Department has issued a fact sheet dispelling some myths advanced by opponents to the treaty. The physical medicine and rehabilitation community has been strongly supporting ratification of the treaty.
The Oklahoma Health Care Authority (OHCA) conducted a webinar discussing the 2014 changes to SoonerCare. The webinar in now archived and can be viewed on the SoonerCare YouTube channelAdditional presentation materials and resources explaining the 2014 changes in greater detail are available through OHCA’s website.
The Oklahoma Policy Institute has launched a resource page for information the Affordable Care Act and Health Insurance Marketplace’s that were launched on October 1, 2013. The website, http://okpolicy.org/health-insurance-marketplace-affordable-care-act-resources-information, contains links, infographics, presentations, brochures, videos, and other valuable information about the Affordable Care Act.
The Center for Learning and Leadership is proud to congratulate Wanda Felty, Community Leadership and Advocacy Coordinator and Oklahoma LEND Core Fculty, Parent/Family Issues, on her 2013 publication in the University of Oklahoma College of Medicine arts journal, Blood and Thunder: Musings on the Art of Medicine. Congratulations Wanda!
Oklahoma ABLE Tech’s 7th edition of OK Funding for AT is available free online at okabletech.okstate.edu/Publications/OK_Funding_for_AT/. This guide is a “funding resource for individuals with disabilities, their families, advocates and service providers” (Oklahoma ABLE Tech).
Ramps.org has created a directory of free ramp builders; the directory is available on www.ramps.org/free-ramps.htm.
Looking for information about Oklahoma’s health insurance marketplace? OKPolicy.org has published a fact sheet about the online marketplace that began on October 1, 2013 and lasts through March 31, 2014.
NPR (National Public Radio) has developed an accessible playground database. The database, available online at http://apps.npr.org/playgrounds/ is searchable by address, city, state, zip code, or by a “Find Playgrounds Nearby” tool. According to NPR, the list is able to be edited by community members based on known information about local parks and accessibility.
The US Department of Education, Office of Special Education and Rehabilitative Services released a Dear Colleague letter on bullying of students with disabilities on August 20, 2013. The letter can be accessed by clicking the following link http://www2.ed.gov/policy/speced/guid/idea/memosdcltrs/bullyingdcl-8-20-13.pdf. In addition to providing guidance through the “Dear Colleague” letter, the US Department of Education also released an Enclosure titled Effective Evidence-based Practices for Preventing and Addressing Bullying (AUCD Resources, 2013).Do you or someone you know use apps designed for individuals with autism or ASD? The Autism Speaks website has the capability to search through “more than 450 apps …by intended use, device, user age group, user/parent ratings and the evidence behind an app’s claims” (AUCD Resources, 2013). Visit http://www.autismspeaks.org/autism-apps?utm_source=email&utm_medium=text-link&utm_campaign=sciencedigest for more information.
Effective September 3, 2013, the Social Security Administration will officially replace the term “mental retardation” with “intellectual disability” in the “Listings of Impairments” used by the department. More information on this change is available on the Social Security Administration website http://1.usa.gov/197yHLA.
A new study called, Power in Numbers: A Profile of American Voters with Disabilities, shows data on American voters with disabilities. The study was published by the Youth Transitions Collaborative’s advocacy working group, which includes the American Association of People with Disabilities, Autistic Self Advocacy Network, The HSC Foundation, Institute for Educational Leadership, National Council on Independent Living and United Cerebral Palsy.
The Institute of Education Sciences (IES) has published a new report on early intervention and early childhood education. The report, Synthesis of IES Research on Early Intervention and Early Childhood Education, can be found on the IES website, http://ies.ed.gov/ncser/pubs/20133001/pdf/20133001.pdf, and includes research on current early education practices.
Five Numbers to Remember About Early Childhood Development from Harvard University’s Center on the Developing Child is an online tool on early childhood development that features an informative and downloadable PDF.
American Association of People with Disabilities 2013 summer interns created a PSA in honor of the 23rd anniversary of the Americans with Disabilities Act ( July 26, 2013). The PSA can be viewed on YouTube, https://www.youtube.com/watch?v=JZX2IxUWwYA .The Social Security Administration’s (SSA) mobile website is now accessible in Spanish! To visit the mobile version of the site visit www.segurosocial.gov on your Android, Blackberry, iPhone or Windows smartphone device.
The Impact of College on Self-Determination is the July 2013 publication from the National Gateway to Self-Determination (NGSD). The publication is a product of Think College in partnership with NGSD.
Resources for Teachers: The Special Olympics get into it website contains educational resources for students grades K-12 on diversity related topics. Please note that this site requires creating a username and password to access certain features.
The Smithsonian has launched a digital disability history exhibit called “EveryBody: An Artifact History of Disability in America.” Visit the exhibit website at http://everybody.si.edu/ for more information.
A recent issue of INSIGHT (No. 20, 2013), a publication of Think College, features tips on starting conversations with colleges and universities about inclusive education opportunities for your child.
We are pleased to announce that the Center for Learning and Leadership/Oklahoma UCEDD has been selected to facilitate Oklahoma’s Community of Practice for Supporting Families of Individuals with Intellectual and Development Disabilities! For more information visit the Community of Practice for Supporting Families with Disabilities facebook page or website at http://supportstofamilies.org/supportstofamilies/.
President’s Committee for People with Intellectual Disabilities 2012 Report to the President is available online. The report includes recommendations on: Disability stakeholder engagement, choice and self-determination, consumer protection and right, quality measurement, and data collection and research.
Autism Speaks is offering resources for individuals with Austim Spectrum Disorders and their family members who have been affected by the recent tornadoes. Visit this site for more information:
The new Diagnostic and Statistical Manual of Mental Disorders (DSM-5) is available. This is the first change to the DSM in over a decade. Included in the new DSM are changes to Autism diagnoses. Read more about the DSM changes here http://www.disabilityscoop.com/2013/05/17/new-dsm-change-assurances/17969/ and at the DSM-5 website http://www.dsm5.org/Pages/Default.aspx.
A bill to end the use of restraint and seclusion in K-12 education is introduced in congress. Read more on Disabilityscoop.com http://www.disabilityscoop.com/2013/05/10/school-restraint-introduced/17919/
A new publication on self-determination and aging titled Research to Practice Self Determination Series: Self-Determination and Aging, from the National Gateway to Self-Determination, is now available online. http://www.aucd.org/docs/publications/nti_selfd_issues/issue5_sm.pdf
“Make the First Five Count from Easter Seals is an advocacy and awareness campaign designed to get children at risk of developmental delays or disabilities the right support they need to be school-ready and build a foundation for a lifetime of learning.” This resource is now available in Spanish, visit the following Easter Seals website for more information: http://es.easterseals.com/site/PageNavigator/ntlc10_mffc_homepage_espanolInformation about the Affordable Care Act is now available in ten Asian and Asian Pacific languages. To access this resource visit the following website, http://www.apiahf.org/policy-and-advocacy/health-care-reform-resource-center/in-language-resources
“In Decade’s Time, Childhood Disabilities Rise 16 Percent,” read the full article here: http://www.disabilityscoop.com/2013/05/06/in-decades-disabilities-rise/17875/
“On the Waiting List, for Life,” an article from Oklahoma Watch about a young boy who spent most of his life on Oklahoma’s Waiting List. To read the article please visit the Oklahoma Watch website: http://oklahomawatch.org/2013/04/26/on-the-waiting-list-for-life/
The National Center for Learning Disabilities has compiled a list of apps for people with dysgraphia or dyslexia. To access the list and for more information please visit their website at, http://www.ncld.org/students-disabilities/assistive-technology-education/apps-students-ld-dysgraphia-writing-difficulties
The Government Accountability Office (GAO) has released a 21 page report on the state of accessible voting in the U.S. The report can found here: http://www.gao.gov/assets/660/654099.pdf
The Administration for Children and Families has created a website with resources for early childhood providers and educators. Visit the website, Autism Awareness and Acceptance in Early Childhood Education, by clicking on the following link: http://www.acf.hhs.gov/programs/ecd/asd
The Oklahoma Department of Human Services has recognized Wanda Felty as the 2013 Donna Nigh Award recipient for her volunteer work in the community. Wanda Felty is a parent, advocate, and Center for Learning and Leadership Community Leadership and Advocacy Coordinator and Oklahoma LEND Core Faculty, Parent/Family Issues. Congratulations Wanda!
NICHQ (National Initiative for Children's Healthcare Quality) has created a toolkit for creating patient and family advisory councils.
The National Collaborative on Workforce and Disability (NCWD) For Youth has published "Youth in Action!" tip sheets for young adults with disabilities.
The Department of Health and Human Services recently released National Standards for Culturally and Linguistically Appropriate Services (CLAS) in Health and Health Care. The standards were developed by the Health and Human Services office of Minority health and are an update of the 2000 National CLAS Standards.